Note – all transcripts are automatically generated by Zoom, please allow for some spelling/grammar issues, as well as some words being improperly transcribed by the software
WEBVTT
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Everyone.
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Hi.
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Hi Kelly!
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Hi.
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How are you?
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I’m okay.
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That’s good.
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Alright!
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Thanks for joining us. Everyone on this Wednesday night.
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Um welcome to the QA session of our social media. Takeover with.
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The wonderful Kelly. If you tuned into social at all, um! You would have seen.
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Uh Kelly as she gave updates and went live on her 5.th
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Live deem extraction surgery with a doctor luggage here on the Gold Coast.
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So we’ll pass over to Kelly in just a sec. I’m Emily.
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Um right myself. Ben and Laura, from the walk with freedom team are gonna assist tonight. Um, cause we have.
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Quite a few questions come through for Kelly, so we’ll be helping um.
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Kelly to answer those.
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Um, and we’ll let Dr. Lucky give a little welcome, and Kelly to give a little bit more of her story just before we get started.
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We do have a lot of questions to get through, so we’ll do our very best. Um! And Kelly has.
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Generously promise to make a few more reels if there’s any questions.
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Um that we don’t get to.
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So um! Just before we pass over to Kelly and start hearing a little more from her story, I’ll just hand over to Dr. Chris.
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Leakage.
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Our Medical Director at Lib. Demos. Surgical Solution.
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Just to give a little welcome message.
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And then we’ll get going.
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Okay, Hi, uh, Emily and Hi.
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Hi. Chris.
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Lauren.
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And Hi!
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Then, and most importantly, Hi.
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To Kelly. What a superstar.
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Uh.
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To be here with us in this forum.
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Day, one after surgery and.
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She’s the biggest personality in the room. And um! I’m going to.
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Really try to just be a fly on the wall. But.
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I’m going to be there at your disposal, Kelly.
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To to assist.
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To try and contextualize some of the comments that you’ve.
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If uh if required. And look, I’d like to thank our whole team, especially Emily, though.
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Who um is about to pop a baby, and I hope it’s not tonight.
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Um.
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That we’ll make do if we have to. Um. She’s an invaluable part of our team, and she’s been leading the.
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Charge with the communications team, and I think all of you agree. She does an amazing job as part of the team to really raise uh lipid awareness.
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Um.
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Look. I’m really grateful, Kelly. Um knowing what surgery is, and it’s no big deal, and it’s.
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Pretty full on. It’s not a easy walk in the park, and some surgeries are.
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Um more challenging than others.
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To have you here, and to be up to open up the Forum for what is a.
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Incredible amount of transparency. I’m always of the belief that.
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Every patient should feel comfortable.
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Being ah able to ask their doctor any question whatsoever. What are the endpoints of surgery? What are your personal? What’s your personal experience?
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What’s your training? What are your complications? What are the horrible complications.
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Okay.
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Yeah.
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And look to be able to to have someone who’s gone through surgery itself. We’ve previously done this with 3 patient panelists where I wasn’t in the room.
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I got booted out. After a few minutes.
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And um.
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But but I’ve been uh invited to uh to hang around. So really over to you, Kelly, and and thanks for being a superstar.
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Really the morning of your discharge.
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Yeah. Um, yeah. I’ve been home for a few hours now. I got discharged uh, as everyone does at 7 o’clock.
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In the morning.
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Which our loved ones or our carers love getting up that early to come, get us.
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Um.
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But yeah, so I don’t quite know where to start. I’m happy to start with questions. But I am, Kelly. I’ve just turned 49.
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I just yesterday had my 5th surgery with Dr. Licket.
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I was Stage 4, Lipidema I’ve had. I think we’re about 27 of Lipidema has been removed from my body.
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Over the course of 18 months.
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Um. So there’s a lot to go through. Every surgery was different.
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Every recovery was different.
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Um. So yeah, Emily, I’m happy to open up for questions rather than me babbling. I know there’s a lot, and I’d hate to miss out on some.
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Good ones.
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Um. Also, if I swear I’m so sorry everyone.
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It’s just let’s find the truck. Alright.
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Yeah.
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Don’t worry. We can edit the recording, so swear away.
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Um. And I didn’t mention this prior, but just for everyone joining us on social. So we have a Zoom Webinar going. We’re on Instagram. We’re on Facebook.
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Just pop a comment or a question.
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Wherever you are. So either in the QA. On Zoom um, or on Facebook.
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Comment or an Instagram comment, and uh Lauren will find it for us.
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Alright!
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So let’s get going.
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Um, hey, Kelly? I’m having my 1st surgery with Dr. Leckidge in 7 weeks time. My biggest fear is, how does he know he has extracted all the diseased fat from the area. I don’t want any left behind.
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So I literally asked Dr. Lekit this the morning before. Well, yesterday oh, my God! Just yesterday.
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Because I’m.
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This is technically my last surgery. And I said this, how do you know you’ve got it all.
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And I think in one of the videos that was uploaded to Instagram, I’m on the table and he’s actually showing where he can feel it.
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So because Dr. Leck.
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Um.
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Ah!
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Doesn’t do.
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The uh.
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Where they open you up and scoop it out and stitch you up.
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It’s it’s all about the feel.
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So I mean I uh.
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I think I’m right, Chris, where you can go by the feel, and because it’s such a different texture to normal fat or good fat.
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Um! He can feel the difference.
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Um.
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Yeah.
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So.
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Yeah.
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Simple as that. Kelly couldn’t be any uh simpler.
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We feel it. That’s the protocol of surgery.
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And really just tell us um.
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Tell us how um.
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Yeah, so like, yesterday morning.
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How all those other areas that we’ve dealt with has it all grown back.
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Yeah. So yesterday morning, so I went in yesterday. My searches were anterior. So front lowers.
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But I pointed out that I think I thought I had some still left in my.
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Upper post, their name on Bum.
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Um, and you went in and felt, and you got some out from the feel of my bottom. You’ve attacked there.
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So that’s good. So like you, it’s a feel, and you can really, once your legs.
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The swelling goes down and the Lipidem is gone, and I have a lot of loose skin.
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Um.
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You can feel.
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Where your legs don’t hurt anymore.
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Um where you touch, but then, as soon as you hit a bit like, so if I went down from my thighs.
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Rubbing my thighs. It felt normal, and then I’d hit below my knee, which I’ve just had done. I could feel the lipid and that pain that you get when someone would touch your legs.
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Um. But up here it had gone so you can.
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It’s really.
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You that to touch your legs and not have pain. It’s.
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It’s weird, but great. It’s great, weird. But it’s different for all of us.
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Especially the older ladies who have lived with it.
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But.
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40 years.
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And plus.
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Yeah, someone is.
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Saying any comment, paying free legs crazy. Sign me up.
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Face.
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Yeah.
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Well, I mean they’re not paying free right now, because they will be. But it’s really it’s a weird sensation to have to touch your own legs, or to knock into a stool.
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Um, and it it doesn’t hurt or leave a massive bruise.
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Yeah.
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That’s amazing. Hey, Kelly, I just wanna let you know I’m gonna leave my video off.
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Okay.
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Oh!
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Okay.
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I remember.
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Because otherwise I’m going to cut you off, and we want to see you. You’re the star. So as long as you can hear me, and we just have a little note coming through, Chris, if you wouldn’t mind shuffling into the center, because on um, the phone, you’re being cut off a little bit. Thank you.
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Hmm.
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Okay.
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Yep.
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Amazing. Alright. So I’m just gonna jump around on the questions a little bit. Because while we’re on this topic of extraction.
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Mhm.
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Um.
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So.
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This one is a question that says.
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Um. I’m just wondering.
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Why, they don’t take a full 5 liters. It’s a bit disappointing to work all that money to only have uh 3 removed.
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So shh.
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Uh.
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Yeah, look, this is obviously a question for Chris. Um, and I am not a surgeon.
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Um, and I have had.
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In some parts of my body massive volumes taken, and in other parts of my body not so massive.
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And I get the um.
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The feeling of disappointment, but I think also.
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To get this far down the track, to have.
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Save the dollars!
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And to have met with Chris and gone through all the protocols. I think you might know in your heart.
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That you’re doing the right thing for you, and that you’ve chosen Chris as opposed to all the other doctors that are around.
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Then you kind of trusted him with this.
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So if he thinks.
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That he needs to stop at getting 3.5 out, or he needs to keep going.
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And 5 isn’t enough, and you need to come back for another one in that same area because of the legislation.
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That now exists.
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Um.
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But it. It’s just gotta be that trust.
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Um to them the surgery that I just had yesterday.
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Chris, took.
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2 leaders.
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Which.
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For me feels really weird, as someone who’s had surgeries that 10 leaders, plus at a time.
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So I just um.
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I understand the disappoint.
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Um, because you’re like, well, God.
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Couldn’t he just have taken more, you know, root around in there and find some more and get it out.
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But.
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He, it’s to do with your veins. It’s to do with your lymph system. It’s to do with your spider veins. It’s everything that’s going on in there. He’s trying not to damage.
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Um, so I understand the disappointment. On one hand.
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But I have to trust.
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That he’s doing the right thing.
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By me, otherwise I’ll go crazy.
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Sorry was that a bit long winded.
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That’s beautiful!
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Yeah.
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Alright, that’s great. Yeah. Would you like to add anything.
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Well, look, I think Kelly is.
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You, you.
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The word trust. I mean, I I trusted the process.
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Working with Dr. Heck. I worked with.
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The world’s most.
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Renowned Lithidema, surgeon in the world.
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And you know 3,000 surgeries with his team of about 10.
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10 surgeons, and the reality is.
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I trusted that process, and for 25 years.
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The same thing as we’re experiencing now over the last 7 coming ideas.
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Is, we do not expect the lithe to come back.
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Um, although never anyone could give a guarantee for that in.
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Hmm.
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About 2,000 surgeries that I’ve done.
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I’ve had.
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Revision surgery. I’ve had to go back to the drawing board and do everything all over again, and even then for that very difficult, patient.
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She was very satisfied and very happy. The reality is, this is not liposuction.
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Hmm.
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Like, if you’re expecting liposuction.
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This dime a dozen doctors that will do it. They’ll they’ll use longing sessions. They’ll.
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Feel that they’re giving extra value to getting some skin done. At the same time, it might feel like extra value. You might feel like you’re better off on the table for 6 h.
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Adding a little bit from the Tommy arms the legs. But the reality is in my world.
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Almost every second patient on some days is had surgery like that before from all over Australia, from overseas.
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And um.
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And everyone’s trying the best, and you get to trust the doctor that you’re talking to. But you have to be very, very clear. There are reasons why, and I never look at a patient and say.
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Okay, I’m gonna get that volume off you because I know there’s a lot of parameters in place.
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I want you to survive the surgery. I don’t want the fact to come back.
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And the good thing that we’re saying with Kelly’s work and everyone else’s before you.
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Is that the awareness is rising, and I don’t believe.
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We’ll have too much longer. We’ll have patients that’ll need any more than 2 at most, 3 surgeries on the legs depending on the progression. So Kelly’s an exception.
00:16:03.000 –> 00:16:04.000
Yeah.
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And and the volumes are very different.
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And all of those surgeries are to get all the fat out. I don’t.
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Want to compromise your normal.
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Skin fat. I don’t want to leave with the divots. I just want to make sure that I’m taking all of that tissue out. Appreciating that I have to go all the way down. Not just the little sculptor, and I’m using a lot of fluid which, if we overdose you with the water assisted uh fluid, which has adrenaline and local anaesthetic.
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Hey? Good! Can you? Simple as that? You could die from.
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Bleeding out. You could die from shock, you could die from all other sorts of problems.
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And you have to ask a surgeon at the end of the day.
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Is your technique gonna have this.
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Back.
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And I have to confidently tell you what their profile of risk is. So this is based on the German protocol of 25 years.
00:16:56.000 –> 00:17:04.000
And essentially, it’s stage surgery exactly the way we do it. And if anything, I’m looking at more ways.
00:17:04.000 –> 00:17:22.000
To do more surgery, and to combine using assistance, and perhaps even renew on and reducing even numbers. But if you feel disappointed because the volumes of bags, aren’t there? I can tell you. We got the lipid.
00:17:22.000 –> 00:17:23.000
Yep.
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And you will know that when you receive for the next surgery 2 months later, and your legs feel particularly different and look different in that place.
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Thanks, Dr. Luggage.
00:17:31.000 –> 00:17:37.000
Just going to tag on um. Another question, which is quite similar, and.
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Um.
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So if you can’t take that from one area, that volume.
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Um with the disease.
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Kent. Sorry if you can’t take up to 5 liters in one area.
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Can it be taken from another area to make the surgery as valuable as possible?
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So again, I presume that’s for me. Then.
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Yep.
00:18:01.000 –> 00:18:02.000
Yes.
00:18:02.000 –> 00:18:03.000
Um.
00:18:03.000 –> 00:18:04.000
Let me tell you not.
00:18:04.000 –> 00:18:07.000
The the reality is.
00:18:07.000 –> 00:18:08.000
Yeah.
00:18:08.000 –> 00:18:10.000
Kelly Kelly. All your surgeries were different because of where the lithe was placed.
00:18:10.000 –> 00:18:11.000
Yeah.
00:18:11.000 –> 00:18:14.000
How it was for you. No 2 patients are the same, even.
00:18:14.000 –> 00:18:16.000
Exactly, exactly.
00:18:16.000 –> 00:18:23.000
We, we will have a patient who will have a slither of lipid tissue, let’s say, in the lower legs.
00:18:23.000 –> 00:18:26.000
I’ll be flat out to get 900 mills total.
00:18:26.000 –> 00:18:29.000
It will take me as long.
00:18:29.000 –> 00:18:35.000
And it will require as much anesthetic fluid to carve it all out.
00:18:35.000 –> 00:18:45.000
And and and at the end of the day the true test is, I don’t have any milk. My calves have a look at the photos in the, in the patient.
00:18:45.000 –> 00:18:49.000
Patient uh case studies, how different their legs look!
00:18:49.000 –> 00:18:54.000
Um, and that’s a 900 Millil surgery. It’s not based on grams.
00:18:54.000 –> 00:19:01.000
Of fact removed. It’s based on the lipid and the surgery directed directly at that.
00:19:01.000 –> 00:19:04.000
And, as I said, most patients will be.
00:19:04.000 –> 00:19:10.000
To maybe 3 surgeries. 90% of patients will have that in their legs.
00:19:10.000 –> 00:19:15.000
Uh Kelly’s an exception, and when I started this I had lots and lots of ladies.
00:19:15.000 –> 00:19:27.000
Like you. I still have way too many patients like you. But the difference between our patients and other patients that I’ve seen elsewhere for second and 3rd opinions. It’s gone.
00:19:27.000 –> 00:19:34.000
It’s not coming back as opposed to patients who have had multiple surgeries. And there’s still challenge with.
00:19:34.000 –> 00:19:36.000
Pain and growing tissue.
00:19:36.000 –> 00:19:48.000
Cool.
00:19:48.000 –> 00:19:49.000
Yeah.
00:19:49.000 –> 00:20:01.000
Thanks, doctor. We just wanted to um address that one. There was quite a few questions around the 5 Leader rule. So I know everyone’s really desperate to hear from Kelly, so we will. We will go back um, but we just wanna drill to clarify that um. I’ve been instructed, Kelly, to turn my camera on when I speak. So that’s why I’m back.
00:20:01.000 –> 00:20:02.000
No worries.
00:20:02.000 –> 00:20:16.000
Yeah, um. So we’ve spoken a little about the 5 leader extraction. Um, I’m gonna try and keep the questions. Um on topic. But if anything pops up while you’re watching, please feel free to pop in the chat. Everyone we can always.
00:20:16.000 –> 00:20:17.000
Circle back.
00:20:17.000 –> 00:20:23.000
Um, probably the next biggest question, Kelly, if you agree, I think, was the cost.
00:20:23.000 –> 00:20:25.000
So.
00:20:25.000 –> 00:20:30.000
Yeah. I wonder if we could start talking about that? So, Kelly, are all your surgeries.
00:20:30.000 –> 00:20:32.000
The same cost.
00:20:32.000 –> 00:20:36.000
Um! What was the cost for surgery, please, and you addressed it on social media yesterday.
00:20:36.000 –> 00:20:41.000
Yeah, I did address it in a real last night.
00:20:41.000 –> 00:20:43.000
Um happy to quickly run through it again.
00:20:43.000 –> 00:20:47.000
Um, otherwise, you know. Jump back on and have a watch. Um, so.
00:20:47.000 –> 00:20:57.000
There. Obviously, everyone is in different positions. I am a full-time working mom. I have a husband. I have 2 kids, and I live in Sydney.
00:20:57.000 –> 00:21:01.000
So uh, I have to wait.
00:21:01.000 –> 00:21:05.000
Uh plan. All of my surgeries I have been planning for school holidays.
00:21:05.000 –> 00:21:06.000
So we then.
00:21:06.000 –> 00:21:10.000
Flights, a com car hire.
00:21:10.000 –> 00:21:11.000
All 4 of us to come on up.
00:21:11.000 –> 00:21:16.000
Then the surgeries um are about uh.
00:21:16.000 –> 00:21:30.000
14,500 to $15,000. That’s for the Miami Private Hospital and Dr. Lecket’s fees. And then the anther test is about $1,800 on top of that.
00:21:30.000 –> 00:21:31.000
Um.
00:21:31.000 –> 00:21:42.000
And and that’s it. I um am very lucky I dressed that I came into an inheritance. Um! And that’s how we’ve managed to afford.
00:21:42.000 –> 00:21:46.000
Um to do all these things with my mobility.
00:21:46.000 –> 00:21:57.000
But um, I know that there is access to super funds. My, I’m with, and I get deadly squat back. Really, I think it’s about $700. It’s not that much.
00:21:57.000 –> 00:22:00.000
When you’re talking about that amount of money.
00:22:00.000 –> 00:22:06.000
Um, I know people. Yeah, access their super do lots of savings. Um, I’m I said, very.
00:22:06.000 –> 00:22:12.000
Fortunate in some ways unfortunate, because it’s an inheritance. But ah!
00:22:12.000 –> 00:22:13.000
Yeah.
00:22:13.000 –> 00:22:15.000
Uh I get it. It’s hard.
00:22:15.000 –> 00:22:16.000
It cost heaps.
00:22:16.000 –> 00:22:21.000
Its commitment. It’s time, it’s everything. It’s a lot.
00:22:21.000 –> 00:22:23.000
Um, and it’s been a massive choice.
00:22:23.000 –> 00:22:25.000
For me to make.
00:22:25.000 –> 00:22:27.000
And put myself.
00:22:27.000 –> 00:22:30.000
At the front of our family for these 18 months.
00:22:30.000 –> 00:22:31.000
Um.
00:22:31.000 –> 00:22:36.000
To to get this done.
00:22:36.000 –> 00:22:40.000
Yeah, in terms of the financial.
00:22:40.000 –> 00:22:47.000
Yeah. And yeah, the emotional is, it goes along with it. But I’m sure there might be questions about that later. I’ll just stick into the dollars.
00:22:47.000 –> 00:22:48.000
You doing well.
00:22:48.000 –> 00:22:58.000
Yeah, I just saw someone come up with a question. Putting myself 1st is the hardest mindset it. 100 is every time I do this. Um.
00:22:58.000 –> 00:22:59.000
I ate.
00:22:59.000 –> 00:23:01.000
It. It’s so hard.
00:23:01.000 –> 00:23:04.000
It’s so hard. Um! I turned 50.
00:23:04.000 –> 00:23:10.000
In April next year, and I’ve just had this mindset since I decided to.
00:23:10.000 –> 00:23:12.000
Go down the surgery path.
00:23:12.000 –> 00:23:19.000
That I’m going to be fabulous and 50, and I’m going to be moving and fierce, and all of these.
00:23:19.000 –> 00:23:21.000
- Words.
00:23:21.000 –> 00:23:27.000
But ah! So that I can get on with my life. I’ve got youngish kids.
00:23:27.000 –> 00:23:31.000
I was losing my mobility. I was feeling blah um.
00:23:31.000 –> 00:23:33.000
And just for once.
00:23:33.000 –> 00:23:39.000
I’m doing this, and then they they’re behind me. They are with me. They can’t believe the change.
00:23:39.000 –> 00:23:45.000
In me either that I move more, I walk, more gate is different.
00:23:45.000 –> 00:23:49.000
Um. The way I hold myself is different.
00:23:49.000 –> 00:23:50.000
Um.
00:23:50.000 –> 00:23:51.000
So.
00:23:51.000 –> 00:23:55.000
Yeah, but it’s I understand it is such a hard mindset, because.
00:23:55.000 –> 00:23:56.000
Everyone.
00:23:56.000 –> 00:24:01.000
Potentially comes before you. But in this instance, when it’s mummy surgery, time.
00:24:01.000 –> 00:24:06.000
I’m on my surgery time, and the kids know that now.
00:24:06.000 –> 00:24:12.000
And the husband too.
00:24:12.000 –> 00:24:19.000
Sorry.
00:24:19.000 –> 00:24:20.000
Oh, yeah.
00:24:20.000 –> 00:24:22.000
So I think that answers the second part of my question that you saw that. No, don’t be sorry, please. That’s great. Um, because it says, Challenge your quality of life improved over the last 18 months.
00:24:22.000 –> 00:24:25.000
And hopefully, it’ll just get better and better.
00:24:25.000 –> 00:24:26.000
Yeah.
00:24:26.000 –> 00:24:33.000
You know now that all the lipid is gone, it gives you a chance to move better, and the weight drops off and.
00:24:33.000 –> 00:24:34.000
Um.
00:24:34.000 –> 00:24:37.000
You just. You feel better in yourself.
00:24:37.000 –> 00:24:41.000
It’s amazing people at my workplace comment all the time like, look at you! Look so amazing.
00:24:41.000 –> 00:24:43.000
So it’s just yeah.
00:24:43.000 –> 00:24:47.000
Yeah.
00:24:47.000 –> 00:24:49.000
Um.
00:24:49.000 –> 00:24:54.000
Kelly, and your experience wasn’t less to have arms done as opposed to legs.
00:24:54.000 –> 00:24:56.000
Financially.
00:24:56.000 –> 00:24:57.000
No.
00:24:57.000 –> 00:25:04.000
Because I had my abdomen done at the same time as my.
00:25:04.000 –> 00:25:12.000
Um. So I think again I addressed this last night. I never had any intention of getting my arms done because they.
00:25:12.000 –> 00:25:20.000
This journey for me was all about mobility. I was losing my ability to walk and move, and I didn’t want to end up in a wheelchair. It’s that simple.
00:25:20.000 –> 00:25:21.000
Um.
00:25:21.000 –> 00:25:25.000
So, even though I had lipid in my arms.
00:25:25.000 –> 00:25:26.000
What ifs?
00:25:26.000 –> 00:25:38.000
Until then it was decided that I needed to have my abdomen done because it fed into my thighs and the lymph system, and it, the overhang and the pressure.
00:25:38.000 –> 00:25:39.000
Um.
00:25:39.000 –> 00:25:50.000
That was in there. And then Dr. Lockett said, Well, if you’re going to have your abdomen done, you may as well get your arms done, because that might save you a surgery in the future. If you do change your mind.
00:25:50.000 –> 00:25:53.000
Which is right? Um, so.
00:25:53.000 –> 00:25:55.000
Yeah, it was the same.
00:25:55.000 –> 00:25:56.000
Cost.
00:25:56.000 –> 00:25:57.000
Um.
00:25:57.000 –> 00:25:59.000
As the other surgeries.
00:25:59.000 –> 00:26:06.000
This had my abdomen and my arms done in the same surgery.
00:26:06.000 –> 00:26:15.000
And you mentioned that you got this very um small refund from your health fund. Um, and.
00:26:15.000 –> 00:26:20.000
Do you want to talk about anything else? Any other rebates? Um!
00:26:20.000 –> 00:26:21.000
For medicare.
00:26:21.000 –> 00:26:23.000
Well, I don’t know. Ah.
00:26:23.000 –> 00:26:25.000
Is a question.
00:26:25.000 –> 00:26:26.000
Yet.
00:26:26.000 –> 00:26:28.000
There is nothing. What do I want to say? Medicare socks? Um!
00:26:28.000 –> 00:26:33.000
Uh booper sucks. Um! Uh! I’m sure every other Health Fund.
00:26:33.000 –> 00:26:36.000
Sucks, too. You pay all this money, and you get very little back.
00:26:36.000 –> 00:26:38.000
On occasion.
00:26:38.000 –> 00:26:43.000
Um! It’s really hard and frustrating that it’s not recognized.
00:26:43.000 –> 00:26:50.000
By Medicare, because obviously, for all of the impact that it has.
00:26:50.000 –> 00:26:52.000
Needs um.
00:26:52.000 –> 00:27:04.000
Whites, lost surgery, knee replacements, hip replacements, mobility, all of these things that Medicare covers. Yet if they treated the root cause of the problem.
00:27:04.000 –> 00:27:11.000
We wouldn’t need all these additional things. And people end up in care facilities because they didn’t know they had lipid and all that kind of stuff.
00:27:11.000 –> 00:27:14.000
So I don’t know if I’ve got any more to say, but I.
00:27:14.000 –> 00:27:17.000
It advocacy.
00:27:17.000 –> 00:27:22.000
Getting the word out groups like this, groups like on the Internet and stuff that.
00:27:22.000 –> 00:27:35.000
Can uh advocate and get the word out. And hopefully, Medicare can recognize the lipid email as well as lymph.
00:27:35.000 –> 00:27:38.000
Absolutely. And that’s big part of what we do as well.
00:27:38.000 –> 00:27:41.000
I went in.
00:27:41.000 –> 00:27:42.000
Yep.
00:27:42.000 –> 00:27:43.000
Yeah. Um, I can just see one question just going back to the abdomen. Sorry. I don’t know if I’m supposed to see them.
00:27:43.000 –> 00:27:44.000
Very, Barbara, please.
00:27:44.000 –> 00:27:53.000
Yeah, um with the abdomen. No, I haven’t had any, was saying. If I’d had skin removal surgery. No, Dr. Leakage doesn’t do skin removal surgery. That’s not his bag.
00:27:53.000 –> 00:27:58.000
Um, so I will one.
00:27:58.000 –> 00:27:59.000
I reckon.
00:27:59.000 –> 00:28:08.000
I will need skin removal surgery. I have a lot, a lot, a lot, a lot, a lot, a lot of loose skin, especially on my upper thigh, my thighs.
00:28:08.000 –> 00:28:09.000
They!
00:28:09.000 –> 00:28:10.000
Now.
00:28:10.000 –> 00:28:16.000
Hangover. The skin hangs over my knees like you can pick it up. It feels like an empty, saggy balloon.
00:28:16.000 –> 00:28:17.000
Bump.
00:28:17.000 –> 00:28:19.000
So I will need skin removal.
00:28:19.000 –> 00:28:28.000
I am going to wait 6 to 12 months to see how much the skin naturally retracts and recover from all of these surgeries. To give myself a good shot.
00:28:28.000 –> 00:28:32.000
Um. I’ve been taking some collagen supplements and all that kind of stuff to get the.
00:28:32.000 –> 00:28:36.000
Uh, skin, healthy and elastic. Kind of thing.
00:28:36.000 –> 00:28:37.000
But um.
00:28:37.000 –> 00:28:39.000
Yeah, my next step.
00:28:39.000 –> 00:28:42.000
Will be skin removal. Um.
00:28:42.000 –> 00:28:44.000
And we’ll see.
00:28:44.000 –> 00:28:46.000
Where I go with that.
00:28:46.000 –> 00:28:50.000
Will you consider the renewal treatment? Kelly?
00:28:50.000 –> 00:28:55.000
- So Dr. Lakesh and I had big chats about renewing for me.
00:28:55.000 –> 00:28:57.000
I chose not to have it.
00:28:57.000 –> 00:29:00.000
Um. And that’s purely because.
00:29:00.000 –> 00:29:02.000
I decided.
00:29:02.000 –> 00:29:03.000
That.
00:29:03.000 –> 00:29:08.000
Even if I had the renewal I would still probably need skin removal.
00:29:08.000 –> 00:29:13.000
Um, and although it may have reduced the amount of skin removal I needed.
00:29:13.000 –> 00:29:17.000
I just. I wasn’t willing to take that risk.
00:29:17.000 –> 00:29:22.000
Just yet.
00:29:22.000 –> 00:29:23.000
Emily.
00:29:23.000 –> 00:29:25.000
Can you hear me?
00:29:25.000 –> 00:29:26.000
Stephanie.
00:29:26.000 –> 00:29:29.000
Yeah, look, I think that’s very valid.
00:29:29.000 –> 00:29:33.000
When when patients have so much.
00:29:33.000 –> 00:29:34.000
Um.
00:29:34.000 –> 00:29:39.000
Progression of lipid, and and they’ve had so much stretch on the skin.
00:29:39.000 –> 00:29:43.000
The skin is an important consideration, and.
00:29:43.000 –> 00:29:48.000
And and what I found so very commonly and.
00:29:48.000 –> 00:29:54.000
Patients who have seen plastic surgeons who are experts at skin removal.
00:29:54.000 –> 00:29:56.000
Really push back on lipid patients.
00:29:56.000 –> 00:30:02.000
Because in their experience, whenever they’ve done work on patients with lipid.
00:30:02.000 –> 00:30:10.000
They have the seromas, they had the hematomas they have wound, they have recurrence, they have more swelling.
00:30:10.000 –> 00:30:12.000
And and for this reason um.
00:30:12.000 –> 00:30:21.000
Removing all of the lipid is really something that they welcome. So the referral pattern is.
00:30:21.000 –> 00:30:25.000
To us, and I’ve been pushing back to them, but they’ve been pushing back to us.
00:30:25.000 –> 00:30:31.000
Do more and more do the abdomen for us. Do this, do that, and if the skin left.
00:30:31.000 –> 00:30:41.000
We’ll deal with it. One thing about the renew on, though, and it almost in a kind of reverts back to some of the earlier conversations.
00:30:41.000 –> 00:30:44.000
I am, however, I practice my practice in 7 years.
00:30:44.000 –> 00:30:47.000
I haven’t changed, my practice being.
00:30:47.000 –> 00:30:52.000
Guided by some rule of 5 liters, because that was never.
00:30:52.000 –> 00:30:54.000
Never the.
00:30:54.000 –> 00:30:59.000
Modus operandi in Germany. I can tell you that openly.
00:30:59.000 –> 00:31:04.000
But where we’ve actually been able to make significant gains.
00:31:04.000 –> 00:31:10.000
Um and efficiencies and safety is combining the renewal which ordinarily, if we did that.
00:31:10.000 –> 00:31:12.000
As a separate surgery.
00:31:12.000 –> 00:31:16.000
Would cost an extra 20 to $30,000.
00:31:16.000 –> 00:31:25.000
Because of how much time it takes in the operating theater to do it. So combining and doubling up on equipment and shrinking.
00:31:25.000 –> 00:31:30.000
That time which would be so extended if I was doing all of that myself.
00:31:30.000 –> 00:31:40.000
Means my expert assistant who you met Dr. Reese uh, who works with me, and and I’ve had Dr. Over the years.
00:31:40.000 –> 00:31:42.000
We’ve um.
00:31:42.000 –> 00:31:44.000
We’ve got to a point now that.
00:31:44.000 –> 00:31:55.000
That redundant skin that’s left behind will be a much, much more normal and better quality skin. So even if you do need skin excision, um.
00:31:55.000 –> 00:32:10.000
And they’re trying to tighten everything like a balloon to a drum to make a type you still left with the skin that’s more empty uh, whereas with the renew on it really does help. But well, I’ll tell you very honestly.
00:32:10.000 –> 00:32:15.000
Would Kelly have benefited from renew on.
00:32:15.000 –> 00:32:18.000
In terms of needing more skin excision. Probably not.
00:32:18.000 –> 00:32:24.000
She probably still would have made the skincision. But what we’re seeing, and even in the.
00:32:24.000 –> 00:32:32.000
Advanced cases is that the areas that need decision, perhaps in the future will be more limited.
00:32:32.000 –> 00:32:42.000
To smaller incisions, more bespoke as opposed to all of the skin, trying to be tightened. But um, yeah, just a little note about the skin.
00:32:42.000 –> 00:32:44.000
Yeah.
00:32:44.000 –> 00:32:45.000
Absolutely.
00:32:45.000 –> 00:32:47.000
And I said, every case is different.
00:32:47.000 –> 00:32:49.000
You.
00:32:49.000 –> 00:32:50.000
Make your own choices.
00:32:50.000 –> 00:32:54.000
And that’s the choice that I made.
00:32:54.000 –> 00:32:57.000
And being confident in your choice.
00:32:57.000 –> 00:32:58.000
Um so.
00:32:58.000 –> 00:33:03.000
Just while we’re on surgery. There’s a couple of questions of a similar nature.
00:33:03.000 –> 00:33:04.000
Um! That.
00:33:04.000 –> 00:33:09.000
Maybe you could address Dr. Luggage, and Kelly can give us your input.
00:33:09.000 –> 00:33:13.000
Also is there a weight limit.
00:33:13.000 –> 00:33:15.000
Or any medical conditions that might need to be addressed.
00:33:15.000 –> 00:33:19.000
Poor surgery would be an option.
00:33:19.000 –> 00:33:24.000
Clearly, Kelly, you would not have had surgery in any other facility.
00:33:24.000 –> 00:33:25.000
No.
00:33:25.000 –> 00:33:29.000
Where they did not understand lipid.
00:33:29.000 –> 00:33:30.000
And the reason.
00:33:30.000 –> 00:33:31.000
100.
00:33:31.000 –> 00:33:34.000
And the reason why, and even even.
00:33:34.000 –> 00:33:44.000
Guests ready that put gastric balloons for some patients down still realize in our hospital that the Bmi.
00:33:44.000 –> 00:33:47.000
Is not appropriate. So we we will talk to Bm.
00:33:47.000 –> 00:33:50.000
To get the nieces to do their bit.
00:33:50.000 –> 00:33:52.000
To make sure that patients is safe.
00:33:52.000 –> 00:33:59.000
But because it’s twilight, it probably didn’t still remember any of the surgeries. It’s safer.
00:33:59.000 –> 00:34:00.000
Um, because the.
00:34:00.000 –> 00:34:12.000
The the the Health Department, who know our hospital as a specialized purpose, built facility for Lipidema, know and have met our own patients.
00:34:12.000 –> 00:34:22.000
At face to face. They understand that this surgery is very different, and we have a medical advisory committee as well as the.
00:34:22.000 –> 00:34:27.000
The the individual anesitis and doctors, who very much had.
00:34:27.000 –> 00:34:28.000
Important.
00:34:28.000 –> 00:34:35.000
Decisions to make, and looking at a patient like Kelly, and saying, Hey, Kelly? Or Bmi’s.
00:34:35.000 –> 00:34:48.000
45, 50. You’re gonna have to just walk away and not be able to walk one day and you will die from potentially lipid. They realize all of our team and all of the.
00:34:48.000 –> 00:34:52.000
Department understands that the Bmi is not appropriate.
00:34:52.000 –> 00:34:53.000
Yeah.
00:34:53.000 –> 00:34:54.000
But.
00:34:54.000 –> 00:34:57.000
But it doesn’t mean that it’s a free for all. There’s a very significant.
00:34:57.000 –> 00:34:59.000
Conservative management program that.
00:34:59.000 –> 00:35:00.000
You would.
00:35:00.000 –> 00:35:02.000
Agree. You had to go through.
00:35:02.000 –> 00:35:03.000
Yep.
00:35:03.000 –> 00:35:10.000
Yeah, you. That’s the thing. I was talking to some of the girls up on my ward last night.
00:35:10.000 –> 00:35:12.000
That um! I.
00:35:12.000 –> 00:35:18.000
Look. I never. I’ve stopped getting on the the scales, you know. Obviously years of trauma.
00:35:18.000 –> 00:35:20.000
Bend.
00:35:20.000 –> 00:35:30.000
Dining, and not dying and exercising, and not exercising all of the things that come with the ladies who discovered their lipid life.
00:35:30.000 –> 00:35:31.000
Um.
00:35:31.000 –> 00:35:34.000
And the Bmi means.
00:35:34.000 –> 00:35:38.000
Nothing. When you have Lupidema, it means nothing.
00:35:38.000 –> 00:35:43.000
The only reason I get on the scale now is for Dr. Babk.
00:35:43.000 –> 00:35:46.000
Who needs to know my weight, to give me the right.
00:35:46.000 –> 00:35:48.000
Anesthetic uh, and that is a.
00:35:48.000 –> 00:35:54.000
Practical thing that he needs to do. And and that’s it. I think getting on the scale is.
00:35:54.000 –> 00:36:00.000
Irrelevant. If you, it’s better to measure, do measurements on all of your.
00:36:00.000 –> 00:36:04.000
Body parts. If you feel like it, or just go by, feel.
00:36:04.000 –> 00:36:07.000
Like it’s um.
00:36:07.000 –> 00:36:11.000
Yeah. So no, Bmi has not come into it with Dr. Chris at all.
00:36:11.000 –> 00:36:14.000
And um.
00:36:14.000 –> 00:36:36.000
But yes, you have to do the conservative management. Yes, you have to do the flatness. You have to do the diet. Yes, you have to get your leg surgery, and by that you’ll try and get your lipidema as soft as it can, as giggly as you can, so that he can get in there and get it out.
00:36:36.000 –> 00:36:39.000
Let’s see.
00:36:39.000 –> 00:36:47.000
That’s true, and then one day he’ll come up and be like wiggles. Everything is like your surgery. Wiggle.
00:36:47.000 –> 00:36:48.000
Um.
00:36:48.000 –> 00:36:49.000
No.
00:36:49.000 –> 00:36:53.000
Let us check myself. Kelly.
00:36:53.000 –> 00:36:54.000
He could.
00:36:54.000 –> 00:36:57.000
Hmm.
00:36:57.000 –> 00:37:03.000
Someone will do a tiktok on that soon. I better be careful.
00:37:03.000 –> 00:37:12.000
Kelly before you came to see Dr. Leckett. Did you deal with any doctors or GPS that weren’t aware of Black Dma?
00:37:12.000 –> 00:37:13.000
And how did you handle that.
00:37:13.000 –> 00:37:14.000
Yeah.
00:37:14.000 –> 00:37:16.000
Yes.
00:37:16.000 –> 00:37:18.000
Um. Yes, so I.
00:37:18.000 –> 00:37:19.000
Um.
00:37:19.000 –> 00:37:20.000
My.
00:37:20.000 –> 00:37:22.000
But uh.
00:37:22.000 –> 00:37:27.000
My legs always my legs, always my legs. Ever since I was a teenager. Um!
00:37:27.000 –> 00:37:28.000
But.
00:37:28.000 –> 00:37:36.000
One night our I think my daughter was about I don’t know. 2 years old, and she crawled on. My legs were playing on the floor.
00:37:36.000 –> 00:37:40.000
And she called on my legs, and I was like, and my husband’s like.
00:37:40.000 –> 00:37:44.000
This isn’t right. That wouldn’t hurt. I’m like that kills.
00:37:44.000 –> 00:37:45.000
Anyway, so.
00:37:45.000 –> 00:37:53.000
Again. I went to bed that night, and I was just scrolling, you know, death scrolling, and I came across not someone.
00:37:53.000 –> 00:37:59.000
And I was a lady, and she had my leg, and then I just deep dived into that.
00:37:59.000 –> 00:38:00.000
And.
00:38:00.000 –> 00:38:04.000
All these pictures of ladies that had legs like mine.
00:38:04.000 –> 00:38:06.000
And so then I went to my Gp.
00:38:06.000 –> 00:38:07.000
Who is.
00:38:07.000 –> 00:38:08.000
Amazing.
00:38:08.000 –> 00:38:11.000
Um.
00:38:11.000 –> 00:38:15.000
But she had never heard of it, and she looked at it was like, Oh, my God! That’s your legs, and I’m like, Oh, my God! It’s my leg!
00:38:15.000 –> 00:38:19.000
And then she. We looked up in Sydney.
00:38:19.000 –> 00:38:26.000
Uh any like specialists or things that she found. Uh Helen Mackey, who lives, who.
00:38:26.000 –> 00:38:28.000
Practices a long way away from where I.
00:38:28.000 –> 00:38:33.000
Live, and I went out and met with her and saw her, and she initially diagnosed me.
00:38:33.000 –> 00:38:34.000
And then.
00:38:34.000 –> 00:38:37.000
That was kind of again, that.
00:38:37.000 –> 00:38:45.000
I think I’ve spoken about it many times. Is love, hate, like I love that I have a diagnosis, but I hate that. I have lipid.
00:38:45.000 –> 00:38:47.000
I love that I can learn all these things, but.
00:38:47.000 –> 00:38:50.000
Bloody hate that it’s happened to me.
00:38:50.000 –> 00:39:01.000
And why me and these stupid legs and all of these things. But then, isn’t it great? I have an answer, and it wasn’t me all along. I’ve been doing all of these things, and it didn’t matter.
00:39:01.000 –> 00:39:02.000
Um! And now I hate.
00:39:02.000 –> 00:39:03.000
But.
00:39:03.000 –> 00:39:06.000
I tortured myself for so long.
00:39:06.000 –> 00:39:09.000
When it wasn’t my fault. Kind of thing.
00:39:09.000 –> 00:39:11.000
So I had a real struggle with that for quite some time.
00:39:11.000 –> 00:39:15.000
Um! And then I went to a conference.
00:39:15.000 –> 00:39:24.000
Somewhere in Castle Hill somewhere. It all gets really blurry. And Chris was talking there, and some other therapists were talking there, and they had like.
00:39:24.000 –> 00:39:28.000
Compression stalls and all this kind of thing, and I learn a bit more.
00:39:28.000 –> 00:39:30.000
And it was really slow.
00:39:30.000 –> 00:39:33.000
Um to come to the party on a lot of things.
00:39:33.000 –> 00:39:36.000
And then I did other research and looked at.
00:39:36.000 –> 00:39:38.000
Um.
00:39:38.000 –> 00:39:40.000
Other surgeons in other ways, and all that kind of stuff, and.
00:39:40.000 –> 00:39:42.000
Ended, circling background.
00:39:42.000 –> 00:39:44.000
After Covid.
00:39:44.000 –> 00:39:47.000
Like. It was a long stretch of time.
00:39:47.000 –> 00:39:52.000
For me before I finally met with Chris in person.
00:39:52.000 –> 00:39:54.000
What the heck was there at that.
00:39:54.000 –> 00:39:55.000
Yeah.
00:39:55.000 –> 00:39:56.000
Maybe in Sydney.
00:39:56.000 –> 00:39:57.000
Yeah.
00:39:57.000 –> 00:39:59.000
Yeah.
00:39:59.000 –> 00:40:00.000
He was.
00:40:00.000 –> 00:40:01.000
But they’re not telling. That was.
00:40:01.000 –> 00:40:06.000
Yeah.
00:40:06.000 –> 00:40:07.000
Out of there.
00:40:07.000 –> 00:40:08.000
Oh, you’re muted! Oh, there you go!
00:40:08.000 –> 00:40:09.000
Thanks. Kelly.
00:40:09.000 –> 00:40:20.000
I just wanted to quickly throw in for everyone cause it seems like every topic that we touch on is just like 10 more questions which is totally understandable. So if you just joining us.
00:40:20.000 –> 00:40:26.000
Um. We’ll get to as many questions as we possibly can, and I just wanted to reiterate that um.
00:40:26.000 –> 00:40:28.000
Tonight, is.
00:40:28.000 –> 00:40:35.000
Just such a small snippet of what we normally do. Um. So we have regular group Zoom calls with Dr. Chris luggage.
00:40:35.000 –> 00:40:40.000
When he spends 2, sometimes up to 3 h answering all your questions.
00:40:40.000 –> 00:40:53.000
Um. Sorry. That’s an option as well. If you haven’t considered that yet, you can find all that info on our website. I just wanted to throw that out there. Um as well. It’s also Kelly is one day.
00:40:53.000 –> 00:41:02.000
Hard stuff, so we don’t want to take up too much of their time, because, of course, her main priority should be rest and recovery. But we’re we’re doing our best. Get through everything.
00:41:02.000 –> 00:41:03.000
Oh, good!
00:41:03.000 –> 00:41:06.000
Thank you, Kelly.
00:41:06.000 –> 00:41:07.000
Um.
00:41:07.000 –> 00:41:11.000
So we’re just gonna circle back a little bit. Now, there’s a lot of questions about um.
00:41:11.000 –> 00:41:14.000
And now, Dave.
00:41:14.000 –> 00:41:20.000
Conservative management in the lead up to surgery. Um, I know you addressed a little bit on socials yesterday, but we just touch on it.
00:41:20.000 –> 00:41:30.000
Again. Um! Did you have to wear your flat net compression for 18 HA day for 8 weeks before surgery.
00:41:30.000 –> 00:41:31.000
Yeah.
00:41:31.000 –> 00:41:37.000
And you know what if it’s your 1st surgery that’s really hard to get your head around, I get it.
00:41:37.000 –> 00:41:38.000
Want.
00:41:38.000 –> 00:41:39.000
Um.
00:41:39.000 –> 00:41:54.000
Yes, I do wear my flat all the time, uh, especially in the lead up to a surgery, and especially after a surgery. I find it really weird these days when I’m not wearing my flat nets or any form of compression.
00:41:54.000 –> 00:41:58.000
So at the I had my arm surgery in January.
00:41:58.000 –> 00:41:59.000
And really.
00:41:59.000 –> 00:42:03.000
Like last week was the 1st time I’ve taken, not worn, my compression.
00:42:03.000 –> 00:42:09.000
To try and get used to not having it on. And my, it feels weird to me to kind of have them.
00:42:09.000 –> 00:42:11.000
Loosen, free.
00:42:11.000 –> 00:42:12.000
Um.
00:42:12.000 –> 00:42:17.000
So. Yes, I do wear my flat nets not right now, because I don’t fit in them, because I’m swollen.
00:42:17.000 –> 00:42:20.000
But maybe next week I’ll get into them.
00:42:20.000 –> 00:42:24.000
Um, and I have an Mldist in Sydney.
00:42:24.000 –> 00:42:32.000
Um who is, was on one of the reels, and she is amazing, and I see her once a week. Um.
00:42:32.000 –> 00:42:45.000
And for an hour, and she does a limp drainage on me. She also is super cool, because not only does she do the lymph drainage, but she’ll um work on any scar tissue.
00:42:45.000 –> 00:42:48.000
Or anything um.
00:42:48.000 –> 00:43:04.000
That she feels like is naughty or is hard, or like sometimes like I call her. Her name is Agnes, and we call it Agnes. Um, I call it the Polish punisher. She sometimes like I’m screaming, or I’m in tears. But then I feel so much better the next day, cause she’s obviously released.
00:43:04.000 –> 00:43:12.000
Some tissue, or she’s like really worked out scar tissues, or she’s given me relief like from.
00:43:12.000 –> 00:43:18.000
Ah! I always relate. My 1st surgery was on my front thighs, my anterior thighs.
00:43:18.000 –> 00:43:19.000
And.
00:43:19.000 –> 00:43:20.000
Ah! Like 2 weeks.
00:43:20.000 –> 00:43:32.000
Into recovery. They felt like they were giant sausages on a barbecue about the split open like it was this sizzling sausage burning.
00:43:32.000 –> 00:43:34.000
Swelling since, and I just.
00:43:34.000 –> 00:43:37.000
Felt like they needed to split, but she helped.
00:43:37.000 –> 00:43:42.000
Kind of move all that fluid around. Move the swelling around and give me some relief. So if you can get.
00:43:42.000 –> 00:43:44.000
Uh meet.
00:43:44.000 –> 00:43:55.000
Ah, masseuse, or anld therapist, or a physio that does all of these things. They will hurt you, but they will get you through. They are magnificent people.
00:43:55.000 –> 00:43:56.000
Hi Kelly!
00:43:56.000 –> 00:43:57.000
Yeah.
00:43:57.000 –> 00:43:58.000
A full transparency.
00:43:58.000 –> 00:43:59.000
Yes.
00:43:59.000 –> 00:44:01.000
Sorry, Kelly. I just um.
00:44:01.000 –> 00:44:04.000
What are your thoughts on this.
00:44:04.000 –> 00:44:10.000
Um charge of people who believe a lipid doesn’t exist.
00:44:10.000 –> 00:44:11.000
The fat.
00:44:11.000 –> 00:44:14.000
Depressed women, lazy women.
00:44:14.000 –> 00:44:20.000
And that there’s no such thing as swelling and fluid.
00:44:20.000 –> 00:44:21.000
Did pay.
00:44:21.000 –> 00:44:24.000
In Lithuania. Just how many mld therapists out there are just doing.
00:44:24.000 –> 00:44:29.000
Nothing for our patients. Why do we use compression? Why do we use.
00:44:29.000 –> 00:44:32.000
Mld Therapists.
00:44:32.000 –> 00:44:37.000
Um, and and you know I can tell you an ultrasound. We can see the secondary lymph, but.
00:44:37.000 –> 00:44:38.000
Hey!
00:44:38.000 –> 00:44:43.000
You know. Have you talked to your mld therapist about this? This is.
00:44:43.000 –> 00:44:46.000
Quite a big deal, and there’s the occasional.
00:44:46.000 –> 00:44:49.000
So called expert here in Australia, who says, well, maybe.
00:44:49.000 –> 00:44:52.000
Maybe they’re right.
00:44:52.000 –> 00:44:54.000
Oh no! Ah!
00:44:54.000 –> 00:45:00.000
No cause like that’s just. I. I feel that if my there, if.
00:45:00.000 –> 00:45:03.000
Uh my mldist.
00:45:03.000 –> 00:45:05.000
Had that opinion I would not be going back there.
00:45:05.000 –> 00:45:06.000
Um.
00:45:06.000 –> 00:45:10.000
Hmm! So did you feel the difference? Did you see the fluid coming down.
00:45:10.000 –> 00:45:11.000
Oh, yeah.
00:45:11.000 –> 00:45:12.000
You can.
00:45:12.000 –> 00:45:13.000
Did you impression? And mild.
00:45:13.000 –> 00:45:17.000
Feel the difference you can. And when she’s working, yeah, you can completely feel the difference.
00:45:17.000 –> 00:45:19.000
Cause she um.
00:45:19.000 –> 00:45:24.000
Uh yeah.
00:45:24.000 –> 00:45:29.000
Yeah.
00:45:29.000 –> 00:45:30.000
Yeah.
00:45:30.000 –> 00:45:32.000
I my! You’ve blown my mind with that, because I don’t understand. You can feel the difference. You can see the difference. You actually feel sometimes almost um.
00:45:32.000 –> 00:45:35.000
But sometimes I feel nauseous.
00:45:35.000 –> 00:45:40.000
Because she’s moved so much fluid around. She’s unstuck it.
00:45:40.000 –> 00:45:41.000
But um.
00:45:41.000 –> 00:45:50.000
I sometimes have to like, you know, couple of hours later I feel a bit woozy, and it’s because she’s moved so many so much fluid and toxins around.
00:45:50.000 –> 00:45:57.000
To unblock that lib system that doesn’t know how to do it itself, because the lipid demon has stopped it for so long.
00:45:57.000 –> 00:46:01.000
So just watch that space. It’s a it’s concerning.
00:46:01.000 –> 00:46:02.000
Hmm.
00:46:02.000 –> 00:46:03.000
And.
00:46:03.000 –> 00:46:05.000
No, I would. I would um.
00:46:05.000 –> 00:46:12.000
Again. I know many women just through this page and other pages that have GPS that don’t believe them. The um.
00:46:12.000 –> 00:46:17.000
Family members that don’t believe them. All these kind of like I feel.
00:46:17.000 –> 00:46:20.000
So much for you. Um! And you try just.
00:46:20.000 –> 00:46:25.000
Try and be strong within yourself, and know if you in your heart of hearts know that it is.
00:46:25.000 –> 00:46:27.000
Not you.
00:46:27.000 –> 00:46:30.000
That you are not like, you know.
00:46:30.000 –> 00:46:34.000
Doing this to yourself. It is just like it’s just.
00:46:34.000 –> 00:46:38.000
Try and believe in your heart and yourself, that.
00:46:38.000 –> 00:46:44.000
You’ll find the answer. Go to a different Gp. Search out, answers.
00:46:44.000 –> 00:46:47.000
And if your family don’t support you, bugger them.
00:46:47.000 –> 00:46:51.000
Take the streets from yourself, and go and find.
00:46:51.000 –> 00:46:54.000
The help that you need.
00:46:54.000 –> 00:46:56.000
Okay.
00:46:56.000 –> 00:46:57.000
Yeah. Good. Good. Point.
00:46:57.000 –> 00:47:00.000
Yeah.
00:47:00.000 –> 00:47:01.000
Kelly, Ed.
00:47:01.000 –> 00:47:03.000
Don’t take no for an answer.
00:47:03.000 –> 00:47:05.000
Okay.
00:47:05.000 –> 00:47:10.000
Um, Kelly, someone’s just asking, how much do you pay for Mld?
00:47:10.000 –> 00:47:14.000
And then also, I’m going to throw 2 questions in at once. Have your link.
00:47:14.000 –> 00:47:20.000
Symptoms improved since surgery.
00:47:20.000 –> 00:47:21.000
Yes.
00:47:21.000 –> 00:47:25.000
Um, how much do I pay for mld? Uh, I think it is like 120 bucks a session.
00:47:25.000 –> 00:47:32.000
Um, and I think I get some of that back uh from like X amount of video sessions per thingy.
00:47:32.000 –> 00:47:33.000
Um.
00:47:33.000 –> 00:47:38.000
So. But it’s you have to do the upfront thing and then claim kind of thing. So yeah, I think it’s about 120 bucks.
00:47:38.000 –> 00:47:40.000
Um.
00:47:40.000 –> 00:47:41.000
And part 2 have, I noticed.
00:47:41.000 –> 00:47:45.000
Yes, if I don’t go, it’s more.
00:47:45.000 –> 00:47:47.000
I notice if I haven’t been.
00:47:47.000 –> 00:47:55.000
So I’m so kind of into it now, because I started mld um about.
00:47:55.000 –> 00:47:58.000
4 months before my 1st surgery.
00:47:58.000 –> 00:48:00.000
Um and.
00:48:00.000 –> 00:48:06.000
I now notice when I don’t have it like if I have gone away, or I haven’t had it for 2 weeks or 3 weeks.
00:48:06.000 –> 00:48:09.000
Like I really notice it, and then.
00:48:09.000 –> 00:48:10.000
Um.
00:48:10.000 –> 00:48:11.000
Agnes, also like.
00:48:11.000 –> 00:48:19.000
She can feel it. I can feel her working harder to empty and drain and move everything around.
00:48:19.000 –> 00:48:22.000
Since surgery, would you say? Only.
00:48:22.000 –> 00:48:25.000
System with that system has improved.
00:48:25.000 –> 00:48:30.000
Um. I don’t have the answer to that. I’m really sorry cause um.
00:48:30.000 –> 00:48:39.000
I would think it has in certain areas. Um, but because I’m still in the process of surgeries. Um.
00:48:39.000 –> 00:48:51.000
I’m still in recovery. So Agnes works on all different parts of me. I would say yes. The length in my upper thighs on the front is probably working a lot better.
00:48:51.000 –> 00:48:52.000
But she still.
00:48:52.000 –> 00:48:59.000
Working on my arms a lot, and she’ll definitely I’ve just had my Lowers done. So she’s got a work cut out for it. There.
00:48:59.000 –> 00:49:02.000
There’s there’s a good.
00:49:02.000 –> 00:49:04.000
Best case is 6.
00:49:04.000 –> 00:49:06.000
And then to 12 months.
00:49:06.000 –> 00:49:08.000
And sometimes longer, for.
00:49:08.000 –> 00:49:10.000
The lymph system to.
00:49:10.000 –> 00:49:12.000
To catch up.
00:49:12.000 –> 00:49:13.000
Hmm.
00:49:13.000 –> 00:49:16.000
With all the healing, the difference between that and someone who doesn’t have.
00:49:16.000 –> 00:49:18.000
Surgery is that.
00:49:18.000 –> 00:49:21.000
The lymphatics are constantly.
00:49:21.000 –> 00:49:24.000
Bombarded with all the furnace of inflammation.
00:49:24.000 –> 00:49:25.000
Yeah.
00:49:25.000 –> 00:49:26.000
So that’s the difference uh.
00:49:26.000 –> 00:49:32.000
Between those who.
00:49:32.000 –> 00:49:33.000
Yeah.
00:49:33.000 –> 00:49:34.000
Move on to surgery. There is a healing process, there is the mld, there is compression.
00:49:34.000 –> 00:49:35.000
But at the end of the day.
00:49:35.000 –> 00:49:42.000
The pains gone, the inflammations gone. If you stage 4 with the dema.
00:49:42.000 –> 00:49:44.000
Um. Then you’re gonna have lymphatics that.
00:49:44.000 –> 00:49:48.000
We’ll have some.
00:49:48.000 –> 00:49:49.000
Cool.
00:49:49.000 –> 00:49:50.000
Permanent scarring, but they’re not going to have to deal with the.
00:49:50.000 –> 00:49:54.000
The ongoing inflammatory tissue anymore, because it ain’t there and it won’t come back.
00:49:54.000 –> 00:49:56.000
But there’s a decent healing process.
00:49:56.000 –> 00:49:58.000
You described it as uh.
00:49:58.000 –> 00:50:04.000
As a sausage about to explode. Um, that’s pretty uh graphic.
00:50:04.000 –> 00:50:05.000
Um.
00:50:05.000 –> 00:50:09.000
That’s a burning situation.
00:50:09.000 –> 00:50:11.000
Yeah.
00:50:11.000 –> 00:50:12.000
But.
00:50:12.000 –> 00:50:14.000
But yes, you get through that right, Kelly, because you wouldn’t come back.
00:50:14.000 –> 00:50:15.000
Yeah.
00:50:15.000 –> 00:50:16.000
Yeah, you get through it, you get through it. I came back.
00:50:16.000 –> 00:50:17.000
Yeah.
00:50:17.000 –> 00:50:20.000
Um. I could also say that um.
00:50:20.000 –> 00:50:24.000
Uh, just recently, Agnes is.
00:50:24.000 –> 00:50:39.000
She was working on the back of my car. So the posterior lowers, and she was saying that she’d been moving all the fluid along, but now she is starting to work on the tissue and the muscles in there, because.
00:50:39.000 –> 00:50:46.000
They’re so tense and so strained because they’ve been carrying so much weight for so long.
00:50:46.000 –> 00:51:00.000
But now she can actually get to them and start working and releasing them and letting them know that they don’t need to be like that so much anymore. They can just relax and release a bit. So that was really interesting to um.
00:51:00.000 –> 00:51:07.000
To hear from her, as well.
00:51:07.000 –> 00:51:10.000
Kelly, did you say in treatment before surgery.
00:51:10.000 –> 00:51:11.000
Did I? What, darling? Oh, yes.
00:51:11.000 –> 00:51:13.000
Did you need thyne treat?
00:51:13.000 –> 00:51:15.000
I did um address this again in a um.
00:51:15.000 –> 00:51:16.000
Yeah.
00:51:16.000 –> 00:51:26.000
In a story last night. Yes, I did. When I 1st came for a consult with Dr. Leitch, and met lovely Riley, one of the sonographers.
00:51:26.000 –> 00:51:34.000
Um! She! They found I had a giant down the back of my right leg.
00:51:34.000 –> 00:51:38.000
Which I didn’t know I had, because you couldn’t see it under the lipid.
00:51:38.000 –> 00:51:46.000
So I went into like the day surgery in the Sydney clinic and Dr. Luggage did the magic injections.
00:51:46.000 –> 00:51:48.000
Um.
00:51:48.000 –> 00:51:50.000
Well, I had a green whistle.
00:51:50.000 –> 00:51:52.000
And that was that.
00:51:52.000 –> 00:51:58.000
Can you imagine Kaylee on agreements.
00:51:58.000 –> 00:52:00.000
Uh.
00:52:00.000 –> 00:52:01.000
Ah!
00:52:01.000 –> 00:52:02.000
But yeah, that’s um.
00:52:02.000 –> 00:52:12.000
Yeah, I didn’t know I had a Spain, and it was quite funny, cause it was on a million years ago. Uh, when I was I was uh.
00:52:12.000 –> 00:52:16.000
Forgive me. I was tap dancing at university, and I tore all the cartilage in my.
00:52:16.000 –> 00:52:18.000
And um.
00:52:18.000 –> 00:52:19.000
That.
00:52:19.000 –> 00:52:22.000
And that needs always been a funny name.
00:52:22.000 –> 00:52:23.000
But then.
00:52:23.000 –> 00:52:28.000
He fixed my vein, and my knee was better so it was a vein all along, not my knee.
00:52:28.000 –> 00:52:30.000
I’ll take all the credit for that.
00:52:30.000 –> 00:52:32.000
Look um.
00:52:32.000 –> 00:52:35.000
The, the, the, this triad.
00:52:35.000 –> 00:52:37.000
Of uh swelling.
00:52:37.000 –> 00:52:41.000
Causes, such as the lipid.
00:52:41.000 –> 00:52:45.000
Which is worsened by Varicus mines, which worsens the lymphedema in that.
00:52:45.000 –> 00:52:49.000
Then versus the live edema. It’s suspicious cycle.
00:52:49.000 –> 00:52:50.000
Hmm.
00:52:50.000 –> 00:52:55.000
And some of the most gratifying things we see. We could start patients on conservative management.
00:52:55.000 –> 00:53:01.000
Includes compression that helps with some pain, but when we fix their legs.
00:53:01.000 –> 00:53:05.000
You know, patients who have had, like 40 liters of lipid in the legs.
00:53:05.000 –> 00:53:09.000
And I fixed one of their buy into the doctor like each. I feel so light.
00:53:09.000 –> 00:53:10.000
Hmm.
00:53:10.000 –> 00:53:25.000
And I haven’t even touched the uh the lymph. It’s really important to know that from an expertise point of view as a philologist, I’m not cosmetic. I’m not plastic surgery, but I know my stuff when it comes to small and legs.
00:53:25.000 –> 00:53:27.000
And hence the ultrasounds.
00:53:27.000 –> 00:53:28.000
Hence.
00:53:28.000 –> 00:53:34.000
2 decades of treating these veins, and it really makes a difference. So for any people.
00:53:34.000 –> 00:53:35.000
Wondering.
00:53:35.000 –> 00:53:42.000
Where do I go with this journey? Start with low lying fruit. Conservative management, understand the disease.
00:53:42.000 –> 00:53:43.000
Had that awareness.
00:53:43.000 –> 00:53:53.000
Put all those pieces of puzzle in place. The next lowing fruit after conservative management.
00:53:53.000 –> 00:53:54.000
Mm.
00:53:54.000 –> 00:53:55.000
It’s get significant binds fixed. We’re not chasing little Spider.
00:53:55.000 –> 00:53:56.000
We want stuff that’s gonna stop.
00:53:56.000 –> 00:53:59.000
The disease and the biden process.
00:53:59.000 –> 00:54:00.000
And help you get better.
00:54:00.000 –> 00:54:06.000
And if you go on to surgery, so you don’t clot and bleed during surgery. So if you’re having.
00:54:06.000 –> 00:54:14.000
Having legs sorted with surgery. If you’ve got a significant, really makes a difference to actually fix it.
00:54:14.000 –> 00:54:18.000
Beforehand, and some patients might actually be able to live with that.
00:54:18.000 –> 00:54:28.000
For a while. It wasn’t like the lipid. Go away, but it might make your life a bit better.
00:54:28.000 –> 00:54:29.000
Absolutely.
00:54:29.000 –> 00:54:31.000
Okay. Kelly.
00:54:31.000 –> 00:54:34.000
There’s so many questions about compression.
00:54:34.000 –> 00:54:35.000
So.
00:54:35.000 –> 00:54:42.000
Oh, my God!
00:54:42.000 –> 00:54:43.000
I hang.
00:54:43.000 –> 00:54:44.000
I’m just going to sort of throw you 3 questions, and you can give us like your best course. If that’s all right, um!
00:54:44.000 –> 00:54:55.000
I am not very good at like the numbers, and the things some ladies are amazing at. Oh, you’ve got the hoopla with the ticket of. I’ll do my best.
00:54:55.000 –> 00:54:56.000
Yes.
00:54:56.000 –> 00:54:58.000
That’s all. That’s all we need.
00:54:58.000 –> 00:55:01.000
Um.
00:55:01.000 –> 00:55:06.000
Sorry you mentioned in social. You had several different compression to choose from.
00:55:06.000 –> 00:55:15.000
So are they flat net customer. Where did you get them from? And are they toeless and crutch lists.
00:55:15.000 –> 00:55:18.000
Okay.
00:55:18.000 –> 00:55:21.000
Yes, um. I have custom made flat.
00:55:21.000 –> 00:55:28.000
I have custom made flat myths because I was Stage 4, and I could not buy off the shelf.
00:55:28.000 –> 00:55:31.000
But it’s those didn’t make them that big.
00:55:31.000 –> 00:55:32.000
Um.
00:55:32.000 –> 00:55:33.000
So that was that.
00:55:33.000 –> 00:55:43.000
So I went to a place in Sydney called Bowerfind Baufinde um, and they do. Custom made to measure flatness.
00:55:43.000 –> 00:55:46.000
They uh do all the measurements.
00:55:46.000 –> 00:55:49.000
Um in store in the city.
00:55:49.000 –> 00:56:05.000
Um. And then you go on this thing that looks like a big star trek like Commander Death thing. And you stand there, and they do like a whole big body scan, and then put the measurements again in, and that gets sent to Germany, and the stockings are made in Germany.
00:56:05.000 –> 00:56:12.000
Um, and then the shipped out to you. So it does. It is a process. It takes a good few weeks, 5 weeks to get them back.
00:56:12.000 –> 00:56:17.000
I originally got them in just black, and I got them open towed.
00:56:17.000 –> 00:56:21.000
Um, and but.
00:56:21.000 –> 00:56:22.000
They were 4. They weren’t.
00:56:22.000 –> 00:56:25.000
Crops. List, those ones? No, they had a crutch in them.
00:56:25.000 –> 00:56:27.000
They’re just stockings.
00:56:27.000 –> 00:56:30.000
And then.
00:56:30.000 –> 00:56:34.000
So I had them, and I had to get them before I had my brain surgery.
00:56:34.000 –> 00:56:52.000
So because you need to wear them after you have your veins done right. Yes, and so then um! And then, when it came to surgery time. I then flipped out in my own little head. No one made me flip out just me talking to myself that I um needed crutches, stockings.
00:56:52.000 –> 00:57:00.000
Um full surgery. And so I rang, and they made a crutchless version for me with the same measurements.
00:57:00.000 –> 00:57:02.000
For my surgery.
00:57:02.000 –> 00:57:05.000
And I got them in a skin colored one.
00:57:05.000 –> 00:57:07.000
So um! That would. They’re my.
00:57:07.000 –> 00:57:14.000
2 flat nets that I have. I wear the black ones over the crashless ones. I find them not as comfortable.
00:57:14.000 –> 00:57:16.000
Uh, the Precious Ones.
00:57:16.000 –> 00:57:30.000
Um. But yeah, they are expensive. Um, and someone was telling me at the morning t’s that we went to. There’s a a fund which I need to look into, or if you work full time, you can get.
00:57:30.000 –> 00:57:31.000
Um.
00:57:31.000 –> 00:57:41.000
Uh funded a pair of flat compressions custom made each year, and this was blew my mind. So I will get some more now.
00:57:41.000 –> 00:57:43.000
Thank you.
00:57:43.000 –> 00:57:45.000
Um.
00:57:45.000 –> 00:57:49.000
We’re gonna we’re gonna jump subjects for a second. Um.
00:57:49.000 –> 00:57:53.000
How did you cope with the perimeter and lack demon.
00:57:53.000 –> 00:57:58.000
Is the removal help this live stage.
00:57:58.000 –> 00:58:01.000
Look. I.
00:58:01.000 –> 00:58:03.000
I don’t know.
00:58:03.000 –> 00:58:08.000
I don’t. I don’t have an answer, because perry menopause.
00:58:08.000 –> 00:58:09.000
Is just like.
00:58:09.000 –> 00:58:20.000
What the hell um! I like right now I’m in the midst of a hot flush, and I can’t tell if it’s because I’ve got 50 compression on, or if my hormones have gone into overdrive.
00:58:20.000 –> 00:58:21.000
Um.
00:58:21.000 –> 00:58:38.000
It’s has it helped with the Lipidema? I don’t. I don’t have an answer. I think it is all for me. The ride of Perry menopause, and the ride of my lipid surgeries and the ride of work, life, anxiety.
00:58:38.000 –> 00:58:41.000
Stress. All of the things is one big.
00:58:41.000 –> 00:58:42.000
Ball.
00:58:42.000 –> 00:58:43.000
For me at the moment.
00:58:43.000 –> 00:58:47.000
Um so, but I have been to my Gp.
00:58:47.000 –> 00:58:51.000
And I am gonna start the hormone gel.
00:58:51.000 –> 00:58:55.000
After this surgery. We didn’t want it to interfere with anything.
00:58:55.000 –> 00:59:00.000
Um, that might be going on. We just kind of was like, let’s just do a clean slate.
00:59:00.000 –> 00:59:05.000
So after this surgery uh, I’m gonna go have mammogram.
00:59:05.000 –> 00:59:12.000
Uh check that. There’s nothing in there that I’m gonna start on some of that hormone. Gel um, and see how I go from there.
00:59:12.000 –> 00:59:14.000
But are they intertwined.
00:59:14.000 –> 00:59:21.000
Who knows? I’m a big, hot mess at the moment.
00:59:21.000 –> 00:59:31.000
And I just on that. I did. Someone did ask about getting your period when you’re at the hospital. Now, I don’t know. I have an Iud.
00:59:31.000 –> 00:59:41.000
So I’ve never had to encounter that. I do know that you’re not allowed to wear a menstrual cup. Um! But I’m not sure what other ladies.
00:59:41.000 –> 00:59:46.000
Do. In that instance I might need to hand over to someone.
00:59:46.000 –> 00:59:49.000
Dr. Linkage discovered that we’re not really.
00:59:49.000 –> 00:59:54.000
Was called in because the lady had one in for a thigh surgery.
00:59:54.000 –> 00:59:55.000
And um.
00:59:55.000 –> 01:00:04.000
And I had to be a jack of all trades and helped get it out because it was really tough.
01:00:04.000 –> 01:00:05.000
Yeah.
01:00:05.000 –> 01:00:06.000
Lots of swelling. So no menstrual cuts definitely not.
01:00:06.000 –> 01:00:07.000
So.
01:00:07.000 –> 01:00:08.000
So I’d.
01:00:08.000 –> 01:00:09.000
Yeah, so, what?
01:00:09.000 –> 01:00:17.000
To. Oh, circulation! To clarify questions. If you have your period on surgery day, best option is a pad.
01:00:17.000 –> 01:00:18.000
Yeah.
01:00:18.000 –> 01:00:19.000
Yeah.
01:00:19.000 –> 01:00:20.000
Yeah, and look.
01:00:20.000 –> 01:00:21.000
I think um.
01:00:21.000 –> 01:00:24.000
Obviously patients feel awkward about it.
01:00:24.000 –> 01:00:26.000
The team are very professional.
01:00:26.000 –> 01:00:32.000
I’ll have all sorts of sanitary products for you as well sometimes. Uh, having.
01:00:32.000 –> 01:00:34.000
Having surgeries during.
01:00:34.000 –> 01:00:37.000
A period can be more uncomfortable.
01:00:37.000 –> 01:00:39.000
So um.
01:00:39.000 –> 01:00:40.000
You know, if you can time it.
01:00:40.000 –> 01:00:44.000
Outside of your cycle. That would be ideal. But um.
01:00:44.000 –> 01:00:46.000
Many a patient had been there, and.
01:00:46.000 –> 01:00:59.000
And the team have been incredible and and supportive and respectful, so you might feel bad about it. But our team um, we just um. It’s our job is to look after you.
01:00:59.000 –> 01:01:00.000
I think.
01:01:00.000 –> 01:01:06.000
Oh, often in that situation I would be embarrassed, too. But to be fair, they’ve probably seen worse.
01:01:06.000 –> 01:01:11.000
Um, and you know you won’t be the first, st and you won’t be the last. That’s maybe the.
01:01:11.000 –> 01:01:15.000
Um! Why, you have to go into it with these things.
01:01:15.000 –> 01:01:16.000
And isn’t.
01:01:16.000 –> 01:01:20.000
And they’re good eggs, everyone. There’s a good egg. It’s fine.
01:01:20.000 –> 01:01:22.000
Yeah.
01:01:22.000 –> 01:01:25.000
Um, Sally, I’m gonna throw in a fun question.
01:01:25.000 –> 01:01:28.000
Any combination, recommendations.
01:01:28.000 –> 01:01:29.000
All the Gold Coast.
01:01:29.000 –> 01:01:30.000
Accommodation.
01:01:30.000 –> 01:01:31.000
Hmm.
01:01:31.000 –> 01:01:32.000
Well.
01:01:32.000 –> 01:01:34.000
Um.
01:01:34.000 –> 01:01:36.000
Here’s the thing with me.
01:01:36.000 –> 01:01:47.000
Um. So I again, I travel with my family, um and my kids uh pool kids. So we stay at family friendly places so they can just um.
01:01:47.000 –> 01:01:57.000
Ah! Run off into the pool. We stay typically at the Diamond Beach resort in Mermaid Mermaid Beach, which is really close to Broad Beach.
01:01:57.000 –> 01:01:59.000
Um.
01:01:59.000 –> 01:02:04.000
I uh! I’m originally from Queensland. I moved to Sydney. Um.
01:02:04.000 –> 01:02:07.000
A long time ago, but I’m originally from Brisbane.
01:02:07.000 –> 01:02:09.000
So um.
01:02:09.000 –> 01:02:11.000
I know the Gold Coast might.
01:02:11.000 –> 01:02:24.000
Some of my family lives on the Gold Coast, and some of my family’s in Brisbane. Some live out in Toowoomba, so this area is not unfamiliar to me, but I know uh! Some of the girls last night was saying at the mantra in Broad Beach.
01:02:24.000 –> 01:02:39.000
Um. I think Broad Beach is a really good place to stay because you. There’s lots of poppy shops. There’s lots of restaurants. The beach is quite nice, the flat path along the beach to walk along. If you want to go for a stroll.
01:02:39.000 –> 01:02:49.000
Pack there is across the road, so you can do a little stroll down. Do some people watching get up for another little stroll, you know, in your post recovery days.
01:02:49.000 –> 01:02:54.000
Gets you out a bit rather than just being stuck in one place.
01:02:54.000 –> 01:02:55.000
But yeah, I recommend.
01:02:55.000 –> 01:03:00.000
Broadbeach Mermaid area, but I love burly as well.
01:03:00.000 –> 01:03:06.000
Don’t go in surface paradise if you can avoid it.
01:03:06.000 –> 01:03:10.000
Alright. We’re we’re going into overtime now, so um! We’ll just do it.
01:03:10.000 –> 01:03:13.000
Really, that’s not so far.
01:03:13.000 –> 01:03:14.000
It has.
01:03:14.000 –> 01:03:17.000
I know it’s just blown by um, so I’ll just do.
01:03:17.000 –> 01:03:22.000
Like a couple more questions, and then we’ll wrap up because we know that everyone um.
01:03:22.000 –> 01:03:23.000
Wants to get on within it.
01:03:23.000 –> 01:03:32.000
Oh, I don’t. And also I don’t want anyone to feel like they’ve missed out. Just so, you know, I think everyone’s taking notes of the questions. If I miss any, I’ll do um little videos and post them.
01:03:32.000 –> 01:03:33.000
Yeah.
01:03:33.000 –> 01:03:40.000
So I promise I’ll try and answer anything and send me curly ones or weird ones. I’m good for it.
01:03:40.000 –> 01:03:41.000
Hmm.
01:03:41.000 –> 01:03:42.000
Can can. Can I just answer a curly one that just came through about.
01:03:42.000 –> 01:03:47.000
Has anyone had hyper volumic shock.
01:03:47.000 –> 01:03:49.000
Kelly, that’s not for you to answer. That’s obviously for me.
01:03:49.000 –> 01:03:50.000
Um.
01:03:50.000 –> 01:03:52.000
But if I knew what it was I’d give it a crack.
01:03:52.000 –> 01:03:57.000
Yeah, I tell you it’s it’s a life threatening conditions.
01:03:57.000 –> 01:04:01.000
Um. And and I think again, as I said, you need to be empowered.
01:04:01.000 –> 01:04:05.000
No matter who you see, to ask all the hard questions.
01:04:05.000 –> 01:04:09.000
About. Tell us your complications. Have you had a patient die.
01:04:09.000 –> 01:04:11.000
If you had a patient, have a stroke.
01:04:11.000 –> 01:04:16.000
A clock from the leg to the lungs. Have you lost the leg? The use of the leg.
01:04:16.000 –> 01:04:21.000
Um! Have you got all the lipid out? And at what cost has this patient.
01:04:21.000 –> 01:04:28.000
Have your patients had in terms of complications. Hyperlamic shock is a serious condition.
01:04:28.000 –> 01:04:31.000
And and and we talk about these.
01:04:31.000 –> 01:04:35.000
Approaches to surgery, and what you need to be aware of.
01:04:35.000 –> 01:04:39.000
That there are facilities, and even in Germany believe it or not.
01:04:39.000 –> 01:04:48.000
Not. Everything made in Germany is the same where they do big megaliths where patients are in hospital for day end.
01:04:48.000 –> 01:04:52.000
And and need multiple transfusions and.
01:04:52.000 –> 01:04:56.000
And the reality is, even then, if you’re just having.
01:04:56.000 –> 01:05:01.000
That removed, no matter where you are in the world, and they’re taking bits and pieces.
01:05:01.000 –> 01:05:04.000
From one area to another, and patients.
01:05:04.000 –> 01:05:15.000
Uh will be more likely to bleed all over with compression, being more challenging, and then consequently having significant blood volume lost.
01:05:15.000 –> 01:05:25.000
Um, that’s not good, that’s enough. A good outcome. The lipid is not sorted, and the patients have more potential risk.
01:05:25.000 –> 01:05:30.000
And then we get asked, what’s the oldest? We can operate on a patient like my oldest patients?
01:05:30.000 –> 01:05:37.000
- This week we had Dr. Theo had a 78 year old that couldn’t walk anymore.
01:05:37.000 –> 01:05:39.000
And we take all measures.
01:05:39.000 –> 01:05:45.000
To to make sure the surgery site, but we take all measures to get that lipid.
01:05:45.000 –> 01:05:47.000
Because without it.
01:05:47.000 –> 01:05:52.000
Coming out. It will keep growing, and it will even be worse, and we have.
01:05:52.000 –> 01:05:59.000
Patient after patient, that we have seen that account to us, the kind of complications that they’ve had.
01:05:59.000 –> 01:06:03.000
Post surgery. Everyone’s trying the best, but I tell you, folks.
01:06:03.000 –> 01:06:05.000
Not all surgeries are the same.
01:06:05.000 –> 01:06:08.000
And definitely not. We haven’t had hyperlamic shock.
01:06:08.000 –> 01:06:12.000
In our facility.
01:06:12.000 –> 01:06:18.000
Thank you. Dr. Luggage. Um, so so, just to reiterate, if we haven’t.
01:06:18.000 –> 01:06:20.000
Gotten to your question tonight.
01:06:20.000 –> 01:06:25.000
Kelly is generously going to make a few more video for us.
01:06:25.000 –> 01:06:34.000
Um everything that she posted yesterday on the social media takeover of the surgery snippets. Recovery getting ready. That’s going to go on to our Instagram.
01:06:34.000 –> 01:06:37.000
Highlight.
01:06:37.000 –> 01:06:51.000
And there’s also quite a few questions coming through like for Dr. Leck. Um medical questions, which is great, and I just really encourage you to join one of our group. Zoom calls um where Dr. Leakage is available.
01:06:51.000 –> 01:06:54.000
Um twice a month.
01:06:54.000 –> 01:06:58.000
And that’s 2 to 3 h answering all your questions. Um.
01:06:58.000 –> 01:06:59.000
We.
01:06:59.000 –> 01:07:00.000
Ask me difficult questions, only difficult questions.
01:07:00.000 –> 01:07:07.000
Yeah, ask the difficult questions. There. Um, tonight is tonight, and yesterday’s very small snippet of um of what we do.
01:07:07.000 –> 01:07:08.000
Um.
01:07:08.000 –> 01:07:29.000
And a couple people asking as well, Kelly, where they can find you. Um, because I know that we do. Sometimes tag people.
01:07:29.000 –> 01:07:30.000
Yeah.
01:07:30.000 –> 01:07:31.000
Um that do our takeovers for us, but just to clarify. So we won’t be tagging Kelly. But if you want to send her a question definitely like Reach out, and Kelly will make some more reels for us. Is that right, Kelly?
01:07:31.000 –> 01:07:33.000
Yeah, the the yes, I think so.
01:07:33.000 –> 01:07:34.000
Um.
01:07:34.000 –> 01:07:35.000
Yes.
01:07:35.000 –> 01:07:36.000
I’ll.
01:07:36.000 –> 01:07:59.000
Get my mind around a lot more social media. I also I just saw in that. I’m sorry, and I know we’ve gone over. But I just saw in the some of the questions or the comments about um people with autism or neurodevergence and um touch and texture and sensory stuff. If you want to send more specific um questions I’m happy to answer. I am not.
01:07:59.000 –> 01:08:09.000
Or testing. I may have Adhd, who knows but um! My uh! Both my kids are divorced, and I uh am very.
01:08:09.000 –> 01:08:11.000
Well versed. I’m cool.
01:08:11.000 –> 01:08:15.000
Um, and happy to answer any questions about that cause. I’ve done a lot of.
01:08:15.000 –> 01:08:16.000
Mm.
01:08:16.000 –> 01:08:21.000
Work with therapists and things like that about sensory processing and.
01:08:21.000 –> 01:08:26.000
Autistic traits and things like that, so happy to answer those questions if you want to shoot them through. But.
01:08:26.000 –> 01:08:30.000
Yeah, um, I could understand the sensory issues around compression.
01:08:30.000 –> 01:08:31.000
Um.
01:08:31.000 –> 01:08:33.000
Especially.
01:08:33.000 –> 01:08:38.000
And Kelly, that’s a really good point, because even in the theater environment.
01:08:38.000 –> 01:08:41.000
And post surgery and compression.
01:08:41.000 –> 01:08:44.000
And the recovery we learn from our patients.
01:08:44.000 –> 01:08:45.000
Yep.
01:08:45.000 –> 01:08:48.000
And uh, and you know, we’ve had a patient recently.
01:08:48.000 –> 01:08:52.000
Who really made us aware of that space. We.
01:08:52.000 –> 01:08:54.000
Still as a team, but.
01:08:54.000 –> 01:08:57.000
Um mindful about each patient’s individuality, but.
01:08:57.000 –> 01:09:02.000
Gave us an opportunity to really start diving deep.
01:09:02.000 –> 01:09:10.000
And to see how those patients particularly need a very.
01:09:10.000 –> 01:09:11.000
Yeah.
01:09:11.000 –> 01:09:13.000
Very particular approach, even post surgery, immediately, post surgery.
01:09:13.000 –> 01:09:14.000
Thanks for that.
01:09:14.000 –> 01:09:16.000
Yeah, no worries. I said, like I um.
01:09:16.000 –> 01:09:17.000
Ah!
01:09:17.000 –> 01:09:18.000
I can. Ah!
01:09:18.000 –> 01:09:26.000
I can’t tell you from experience, but from land knowledge having to live with it now, I happy to help.
01:09:26.000 –> 01:09:30.000
Thank you, Kelly. So just to reiterate to everyone, um.
01:09:30.000 –> 01:09:37.000
If you do, if you haven’t got your question answered, or if you have a question for Kelly, shoot it through on our walk with freedom.
01:09:37.000 –> 01:09:42.000
Social media, Facebook, Instagram, and just say, Hey, I’ve got a question for Kelly.
01:09:42.000 –> 01:09:44.000
And Kelly’s.
01:09:44.000 –> 01:09:51.000
Get really generously agreed to build some more reels for us, and we’ll add that to the highlights.
01:09:51.000 –> 01:09:54.000
Um. And just so everyone knows as well with.
01:09:54.000 –> 01:10:03.000
Very, very transparent. Um on socials, both myself and now, Lauren, work very hard on Facebook and Instagram, replying to all your messages.
01:10:03.000 –> 01:10:15.000
If we can’t anti- then Dr. Chris leakage will answer you cause I know that sometimes people want to clarify something before joining the zoom, or before going onto a consult.
01:10:15.000 –> 01:10:18.000
Um. So our team is very transparent and basically available.
01:10:18.000 –> 01:10:25.000
All the time. Really shoot your questions through, and we will do our very best to answer them. There’s nothing that we can’t.
01:10:25.000 –> 01:10:26.000
Answer for you.
01:10:26.000 –> 01:10:29.000
Yeah, your team are wonderful. And if I could.
01:10:29.000 –> 01:10:31.000
Say that again. Um.
01:10:31.000 –> 01:10:35.000
You know, behind Emily, I can see you’re at work.
01:10:35.000 –> 01:10:42.000
And I can see the chairs of the team that are. There’s just so much commitment, you know. I’ve never.
01:10:42.000 –> 01:10:46.000
Had the privilege to work so much in a space where.
01:10:46.000 –> 01:10:48.000
All staff members are committed.
01:10:48.000 –> 01:10:53.000
Um, you know there’s tears in the eyes of stories we hear.
01:10:53.000 –> 01:10:56.000
Hardship and and and disability.
01:10:56.000 –> 01:10:59.000
And you know, we just wanna do more and more.
01:10:59.000 –> 01:11:05.000
But, um, we’re we’re very fortunate to have the honor of being able to look after our patients.
01:11:05.000 –> 01:11:08.000
And have them. Trust us with the care, and I’m.
01:11:08.000 –> 01:11:11.000
Personally, very very grateful.
01:11:11.000 –> 01:11:14.000
By having an amazing team in you all.
01:11:14.000 –> 01:11:18.000
Uh doing the wonderful work. And, Kelly, you’re a superstar. That’s the only way I.
01:11:18.000 –> 01:11:19.000
Oh!
01:11:19.000 –> 01:11:21.000
Can describe you.
01:11:21.000 –> 01:11:24.000
And then very passionate about your cause.
01:11:24.000 –> 01:11:31.000
And uh, and and you just like the place up when you come in. And uh.
01:11:31.000 –> 01:11:32.000
No.
01:11:32.000 –> 01:11:33.000
And we are, gonna miss, you cause that ain’t gonna happen.
01:11:33.000 –> 01:11:35.000
But at least the Miami Private Hospital.
01:11:35.000 –> 01:11:41.000
Um. But obviously we’ll be very much in touch with you, and and monitoring your progress.
01:11:41.000 –> 01:11:42.000
Yeah.
01:11:42.000 –> 01:11:47.000
And I’m just gonna hide. If any of the girls from last night are out there.
01:11:47.000 –> 01:11:49.000
Hope you’re doing okay?
01:11:49.000 –> 01:11:52.000
Hmm.
01:11:52.000 –> 01:11:53.000
Just.
01:11:53.000 –> 01:11:55.000
Finished. Then, on a last question.
01:11:55.000 –> 01:11:56.000
Yep.
01:11:56.000 –> 01:11:58.000
Which is.
01:11:58.000 –> 01:12:01.000
I’ll do it like a two-part question. But.
01:12:01.000 –> 01:12:04.000
One? Do your legs feel lighter.
01:12:04.000 –> 01:12:08.000
And to how was recovery?
01:12:08.000 –> 01:12:10.000
Between each surgery.
01:12:10.000 –> 01:12:11.000
Ah!
01:12:11.000 –> 01:12:17.000
Uh! Do my legs feel lighter? Yes, um, I think I address uh again addressed it in one of the reels.
01:12:17.000 –> 01:12:18.000
Yeah.
01:12:18.000 –> 01:12:19.000
Um.
01:12:19.000 –> 01:12:21.000
It’s um.
01:12:21.000 –> 01:12:29.000
It wasn’t for me. It wasn’t an instant thing cause uh of the swelling, and the pain like that comes along with the surgeries.
01:12:29.000 –> 01:12:37.000
Uh, but yeah, it just in. One day I went to walk up a set of stairs, and normally I would.
01:12:37.000 –> 01:12:45.000
Wait for other people to come down or all go up, so I wasn’t holding anyone up, but I just walked up the stairs, and it.
01:12:45.000 –> 01:12:48.000
Wasn’t a chore, and I just walked up the stairs.
01:12:48.000 –> 01:12:54.000
Um. And then the other time that I really noticed it again, was walking in sand.
01:12:54.000 –> 01:12:56.000
Like I used to hate so I.
01:12:56.000 –> 01:13:03.000
Still not my favourite thing going to the beach, but uh having to lug all of the things that you have to lug when you’re a kid.
01:13:03.000 –> 01:13:05.000
Uh, when you have kids.
01:13:05.000 –> 01:13:07.000
Um.
01:13:07.000 –> 01:13:12.000
And then through the soft sand, everything. And one day I just noticed that it wasn’t as hard. So yes, my legs.
01:13:12.000 –> 01:13:15.000
Do feel lighter.
01:13:15.000 –> 01:13:18.000
And everyone in my family and friends say that I have a different.
01:13:18.000 –> 01:13:23.000
Guys, I I walk differently. I hold myself differently. Um, cause. I guess I’m not.
01:13:23.000 –> 01:13:26.000
Lifting as much with each step.
01:13:26.000 –> 01:13:33.000
Um, and I forget what part 2 was sorry.
01:13:33.000 –> 01:13:34.000
Thank you, Kelly.
01:13:34.000 –> 01:13:35.000
But.
01:13:35.000 –> 01:13:41.000
You started to touch on it, but.
01:13:41.000 –> 01:13:42.000
Um.
01:13:42.000 –> 01:13:43.000
How was the recovery for you? So, having had 5 surgeries, how was the recovery between.
01:13:43.000 –> 01:13:45.000
Every surgery is different.
01:13:45.000 –> 01:13:49.000
Every surgery is different. I can’t.
01:13:49.000 –> 01:13:53.000
There’s no how is the recovery? My 1st surgery.
01:13:53.000 –> 01:13:56.000
Was brutal. I thought I was going to die.
01:13:56.000 –> 01:14:06.000
I thought, what the hell have I done to myself? How can I have done this? Why did I make this choice? Oh, my God, I’m gonna die! I’m never gonna get better. Blah blah blah! And I did.
01:14:06.000 –> 01:14:10.000
And I’m fine. And then the next surgery.
01:14:10.000 –> 01:14:24.000
Wasn’t so bad. It wasn’t as bad as that, so I think every time I’ve gone into a surgery I’ve gone in with that feeling that I had from the 1st surgery, knowing that nothing could be as bad as that one, and they are brutal and.
01:14:24.000 –> 01:14:36.000
They can be really hard, and I am not one of those amazing women who are probably out there who can get by on the 2 pana doll and a drink of water, and up they go for their, you know.
01:14:36.000 –> 01:14:48.000
Little walk every hour I am. Uh I give me all the drug. I’ll take them all. Um! I don’t want to feel anything kind of chick.
01:14:48.000 –> 01:14:50.000
So um.
01:14:50.000 –> 01:14:53.000
- Recovery has been very different.
01:14:53.000 –> 01:14:59.000
Some have been much longer than others, and some have been quite short, and then, surprisingly.
01:14:59.000 –> 01:15:01.000
So.
01:15:01.000 –> 01:15:05.000
The 1st surgery. I was in a lot of pain for a really long time, but my 3rd surgery.
01:15:05.000 –> 01:15:11.000
I went to the cinema 4 days after I had surgery I was walking around Pacific Fair, and I went to the movies.
01:15:11.000 –> 01:15:15.000
And we one after one surgery. 3 days after I went.
01:15:15.000 –> 01:15:19.000
To that Horse Show nearby world. Kind of thing. So.
01:15:19.000 –> 01:15:21.000
Every surgery and every recovery is.
01:15:21.000 –> 01:15:26.000
Different.
01:15:26.000 –> 01:15:31.000
Yeah, just like every story, and every journey is different.
01:15:31.000 –> 01:15:32.000
Yeah.
01:15:32.000 –> 01:15:33.000
Yeah. Um. Kelly, someone has said.
01:15:33.000 –> 01:15:47.000
I have my 1st surgery in just under one week. And I wanna say a massive thank you for the day in the last videos. I’m just so much less anxious now, having seen the process. And what is coming. Good luck with your recovery.
01:15:47.000 –> 01:15:53.000
Uh, thank you. I’m so glad that um! That’s why I did it. That’s why I said, Let’s do it.
01:15:53.000 –> 01:15:57.000
Let’s show everyone cause. I think, that played into my anxiety.
01:15:57.000 –> 01:16:10.000
With the 1st couple, not knowing what I was walking into. Where did I go? What did I wear? Who did I put? Well, who does? What? Where does my phone go? Where does my bad go? Where my undies? Do I not wear my undies? What I get all that.
01:16:10.000 –> 01:16:11.000
So I hope that.
01:16:11.000 –> 01:16:13.000
Appeased. Some of.
01:16:13.000 –> 01:16:19.000
That anxiety. Of course you’re still going to feel sick about it. Of course you still gonna feel nervous about it. But maybe this takes just.
01:16:19.000 –> 01:16:21.000
A little layer off.
01:16:21.000 –> 01:16:22.000
Yeah.
01:16:22.000 –> 01:16:24.000
Absolutely.
01:16:24.000 –> 01:16:34.000
And Kelly, you are just such a superstar, I just wanna say, like day one personal like on the zoom, answering the questions like, Oh, my gosh! Honestly.
01:16:34.000 –> 01:16:35.000
Hey!
01:16:35.000 –> 01:16:36.000
Thank you so much.
01:16:36.000 –> 01:16:38.000
Yeah, it’s good.
01:16:38.000 –> 01:16:40.000
All good. Thank you for having me.
01:16:40.000 –> 01:16:43.000
And thanks for looking after me. Everyone.
01:16:43.000 –> 01:16:45.000
And um.
01:16:45.000 –> 01:16:48.000
Yeah. Everyone out there who’s watching and listening.
01:16:48.000 –> 01:16:52.000
Do you advocate for yourself whatever feels good for you?
01:16:52.000 –> 01:16:53.000
Do it for you.
01:16:53.000 –> 01:16:57.000
That’s it, and I know sometimes that’s the hardest thing to do.
01:16:57.000 –> 01:17:09.000
Yeah.
01:17:09.000 –> 01:17:10.000
Yeah.
01:17:10.000 –> 01:17:11.000
Okay. Well, I think we will finish there. Um, Kelly, thank you so much. Again. We wish you will obviously talk very soon, but you know we do wish you all the best with your recovery.
01:17:11.000 –> 01:17:21.000
Yeah, I’m gonna do um. I’ll see how you guys go. But I might post. I don’t know if anyone wants to see. I’ve got my Dvt. Check on Friday, so I might film that as well.
01:17:21.000 –> 01:17:25.000
So you can all see what happens. That’s the 1st time you take your compression.
01:17:25.000 –> 01:17:32.000
And I think that is Riley there. I know Riley might do it this week. She’s the sonographer who’s done all my other ones, and.
01:17:32.000 –> 01:17:38.000
They look for Ceromas and make sure there’s no Dbts. And then you get to see your stitches for the 1st time, and.
01:17:38.000 –> 01:17:44.000
See what it looks like under that um layer of like elastic.
01:17:44.000 –> 01:17:46.000
Yeah. All that fun stuff.
01:17:46.000 –> 01:17:47.000
Hmm.
01:17:47.000 –> 01:17:48.000
Yeah.
01:17:48.000 –> 01:17:50.000
It’s really gross sometimes, too, but it’s.
01:17:50.000 –> 01:17:51.000
Mm-hmm.
01:17:51.000 –> 01:17:52.000
Yeah, full transparency. It is gross, but.
01:17:52.000 –> 01:17:55.000
It’s great!
01:17:55.000 –> 01:18:06.000
Okay? Well, yeah, thank you so much. Again, I’ve got a little slide there. If anyone would like to screenshot that for the walk with freedom socials. If you sign up to our emails.
01:18:06.000 –> 01:18:12.000
You’ll get a little email notification whenever we do things like this in the future.
01:18:12.000 –> 01:18:25.000
Um. And yeah, just thank you again, Kelly. Thank you. Chris. Luggage. Thank you. Ben Lauren. The whole team. Thank you to you for joining us tonight. Um, we wish you all the best, and yeah, we’ll see you very soon.
01:18:25.000 –> 01:18:26.000
Thank you.
01:18:26.000 –> 01:18:27.000
Thank you. Gay.
01:18:27.000 –> 01:18:28.000
Oh, my!
01:18:28.000 –> 01:18:40.000
Thanks. Everyone.