Note – all transcripts are automatically generated by Zoom, please allow for some spelling/grammar issues, as well as some words being improperly transcribed by the software
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Closely monitor testimonials for doctors and health practitioners.
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Therefore we’re unable to post anything that is a opinion based or testimonial in nature to our website.
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So if you’re viewing this as a recording, just be aware that we may have edited sections out to comply with those afar requirements.
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And finally, this evening session shouldn’t be considered medical advance.
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And if you have questions at a medical in nature, should definitely direct those to healthcare Provider.
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The aim of tonight is to hear tips, tricks, and hacks from people who have been through it all before.
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However, they’re experiencing are relative to them, and all patients have different outcomes based on their own criteria.
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Dr. Leckie just gonna jump on now and offer a message of welcome and support, and then he’ll sign off in order for Christy and Misty’s mass for their voices, and the lapidemic communities.
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Voices, of course, speed the lattice, although he will listen back to the recording in order to get feedback.
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Sorry. Thank you, doctor.
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Thank you, Emily, and thank you, Steve, and thank you Sarah and Cathy, from the team that worked so hard for webinar awareness month and tirelessly to work hard.
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On the list of every patient, and a doctor in Australia. Thank you to Misty and Christy and Dana for the being so brave to come on and and talk to us.
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And where do we get this idea from? Well, many moons ago, when my hair was darker and my as a medical student, a very wise mentor in medical school, said, we learned the most from our patients, and it couldn’t be any truer, as we look at the journey of our patients who have live the
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Derma, and and the purpose of tonight is to give you an open voice to speak to patients.
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We’ve got a great cross section of patient experience, as you juggle life, and you juggle Lyme, and you’ve been through all your journeys, and and we think it’s wonderful that other patients have the opportunity to learn it’s been a real
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exciting buzz amongst our patients who I’ve spoken to, who really look forward to tonight and wanted to contribute.
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And and I reassured everyone that my lips will be sealed.
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You are here from me, and in fact, Emily’s going to do this very ceremonial click, and Dr.
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Is out. So I want you to be aware that I’m nowhere to be seen or to heard, and I really give you your blessings tonight, and a big gratitude to all of you as you share your experience with of past, present, and future.
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Patients who have had this very difficult journey, and to help them make it a lot easier as they walk through this journey, and eventually come out of it through the other end, like you have, and thank you very much.
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My pleasure.
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Good night.
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And Emily, thank you for for hosting tonight. Have a good evening bye, bye, bye!
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Thanks. Okay, thanks so much. Dr. Licky, as we heard him say.
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There. He’s now Dr, like, it’s just signing off for tonight. And we’re gonna hear from our patients experiences. That being said, let’s hear a little bit. First, you, Christie, if you don’t mind going first on your journey. And then Misty, yeah, okay.
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Yeah, that’s fine. Yeah. Okay. Hi, everyone. I’m Christie.
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I’m a 31 year old, mom to 3 kids.
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Each under 9 years old. I have had full lipoedema removal surgeries with Dr.
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Luggage over the last 11 months I discovered I had lipoedema in 2,020.
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Ironically through an influence on on Instagram, who had just received the same diagnosis, and she was explaining the symptoms, and I thought, Oh, that sounds very similar to what I’ve been dealing with through that I then did a lot of research and was lucky enough
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to stumble across work with freedom. And that’s where my journey sort of began with.
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Right. Thanks, Christie. And what about your journey? Misty?
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Hi! Everyone! I’m misty. I’m 62.
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My lipoedema. I guess I’ve known I’ve had it since about 2,010, but I was never diagnosed.
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I knew it was the family legs, and I kind of knew about it.
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Didn’t know that anything could be done about it. In 2,021 January I was sitting on my couch, my light the demon blown up, my legs were swollen.
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I could barely move them, sat on the couch crying, and thought, I’ve got to see if there’s anything we can do anymore nowadays.
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I looked online, came across Doctor Heck, then came across Dr.
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And found that he had trained with Dr. Heck was in Australia, rang up that day and made an appointment and come February 2021.
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I was formally diagnosed. I initially thought, I’m only gonna do the conservative pathway, because I don’t know if I can stick to the dietary requirements.
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The Conservative treatments, but within them, when I hopped in the car on my way home, my husband said to me, Misty, you spent whatever we need to get you well.
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So within a month I took myself on the surgical pathway, and within 12 months I was surgical, ready it’s been extraordinary.
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My life has completely changed.
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Okay, now, just so everyone knows we had planned to be joined by Ana this evening.
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She’s unfortunately a little delayed on a flight, so we will continue, and hopefully she is able to join a little bit later.
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Now I’ll I’ll get started with a couple of couple of hours, frequently asked questions.
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If that’s okay, just to get the bow rolling a frequently asked question is, why did you choose? Dr.Lekich
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and lipoedema surgical solution over someone else.
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Hi. I originally looked at a few different surgical options I’ve spoken to a couple of different sergeants, a few different specialists over a 12 month period, and the first consult that I went to lipoedema surgical solution with walk with freedom
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the instant feel of family when I walk through that door was incredible.
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I instantly felt comfortable. Everything was explained to me so very clearly, and the problem and everything that follows with that works incredibly for my life.
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For me there was no doubt that was the right place for me to be, and looking back, I would not change anything.
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I just everything was great for the last 4 surgeries.
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I could not fault a single moment. During that time.
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Thank you, Christy. Did you wanna add anything misty?
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Mine was, I might have point with Dr. And I got to see him in Sydney when I met him I was standing in my underwear getting measure it up, and various things, and he looked at me and said, You’ve got lipoedema stage 4 this changes sure he
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was just, very, very practical. I liked the training that it had with Dr.
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Heck. I liked him. I liked his honesty, I liked his practicalness.
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I am more than happy to travel from Sydney to, or have been for 6 surgeries, plus 2 dot domains travel up, travel up to the Gold Coast just to be one of his patients.
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I didn’t want skin excision at the same time, because I was thinking I’ve got a lymphatic disease.
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Those large leg incisions, cut through your leg, and emphatic.
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I can’t risk my legs like that. So I wanted the.
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I wanted his very conservative approach. I took it even more conservatively.
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I could have done it in, or maybe 5 surgeries really but I wasn’t coping with it, but I stick for me. I would stick with Dr. Lekich
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In anything that he recommends. Love, man, love the place, love, the surgery, love of attitude.
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Okay. Thank you mistake. Sorry. Everyone. I’m getting ahead of myself.
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I should add, of course, please go for it. Pop your questions in the box, and we’ll begin reading them out.
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So feel free to do that anytime. We have a couple popping up already, so let’s get started.
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This question is, what surgeries did you have? And are you happy with the results?
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How much was removed?
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Would that go first, Christie? Yeah, thank you.
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Okay. Yeah. So I’ve had 4 surgeries.
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Recent.
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My last was actually just on the sixth of June, my full surgery is the first one, was my posterior, and my shelves, so my lower back and I had 7.4 later as removed, which was an incredible difference.
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On my back, pain initially. So the first surgery completely changed my life.
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Straight away, my second surgery following. That was my posterior size, and I had 6.2 later as removed from the back of my thighs at that point in time, recovery from that was was a lot easier than my first surgery.
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The first one was really, really rough. Third surgery.
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I had the front of my sides done, and it was he was 5 point something latest.
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I can’t remember exactly. It was the easiest recovery out of all 4 surgeries by far.
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I was up and about. I had no issues moving whatsoever.
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Was extremely comfortable, and the last surgery, which was my lowest.
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So I’m currently just over 2 weeks now, and walking is still very touchy.
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My ankles are extremely so. My right leg is giving me an awful lot of trouble, and my knees are not happy at all.
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Hmm!
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I had 2.4. Latest removed from my lowest, which is a drastic difference from from my top half of my legs, but was also the very least affected as far as the lipoedema was concerned.
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Compression is definitely key with being comfortable for this surgery right now.
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Yeah.
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So it’s just Justin under 22 latest of total that I’ve had removed from my legs via the full surgeries.
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Amazing.
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So, and the pain is gone. Okay, I’m a whole new May.
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Oh, that’s beautiful! And would you like to speak to that misty?
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What surgery has he had in there? Are you happy with the results?
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Yup, I have paid. December 2020.
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Dr. Lekich treated both my legs to March 2021 I started my surgeries.
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I’ve had 6 over 12 months I got a total of 24.5 litres removed.
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Hmm!
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I did my lowest first I was allowed to choose which one to have done, first, because of which bothered me the most, and I hated that people always stared at my lower legs, and that might be enormous kangaroos.
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It was just humiliating, and I had lost 30 kilos previously.
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Hmm!
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My legs never changed. I had enormously 8.1 leases just from the clouds.
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That was horrific. A lot of damage. There!
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40 years of damage in those lower leagues so it was a lot of even though I had softened everything up.
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There was a lot of nerve damage, a lot of skin damage, a lot of pain for the first procedure.
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Then I had. I think it was anterior size, but and saddle bags with a big one of 5.8 litres.
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Then I think it was posterior size. Then arms, and then mark.
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This year with stomach and a bit of review on my size.
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Sorry I forgot the other bit of the question.
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Well they end. The last little bit of the question was, Are you happy with the results?
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Am I happy with my life? Attribute mythodema treatment absolutely ecstatic.
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I can walk anywhere I can run. I have no pain.
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I am absolutely delighted that when I put my knees together in bed at night, they hurt when I first took my compression off after surgery, I had to ask my husband is that normal that it hurts when you lie with your knees together I’ve never had it apparently it’s
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normal. All you gotta do is adjust the position and the brain goes away.
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I love having pain with my knees against each other, weird but wonderful.
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Yeah, but static with my surgery.
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Oh, that’s that’s so wonderful to hear!
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Okay, what about what was your recovery like? How long did it take?
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And what was the most surprising aspect, post surgery.
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Definitely.
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Oh, recovery was different with H. Surgery definitely. The first one which I thought was the worst, until I had my lowers done.
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You don’t realize how much you utilize your bum to move so simple things initially with the first surgery, like sitting down and shifting myself on the bed.
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I couldn’t do. I had to physically use my upper body strength to lift myself and move.
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Hmm!
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That surprised me, cause I was not even thinking. Oh, yet it’s going to be hard to roll over, embed. I couldn’t lay on my side interior and posterior size.
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Hmm!
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Look it. It wasn’t. It was pful, but it was a lot easier than that initial surgery, and I think my body had adapted through.
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In a sense that it knew what it was in, for after the first surgery, and because it wasn’t such a dress to come out removed as well with those same 2 surgeries.
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It wasn’t as hard, this one I was not expecting the pine to be like this.
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I hadn’t thought about the fact that there’s nothing there to to help heal in the sense of.
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Yeah.
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Your lowers is just born and ligament really, and in the big view of it all, you’ve got your cast muscle. But that’s it.
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So you say, your muscle. Finally, when that with the dam is removed, and that’s amazing.
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But you don’t think of the pain that’s going to be there a little bit, you know.
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It’s like the day after the day after the gym.
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Your muscles are. They just ache, and you’ve gotta be very careful with the way that you move, because it can.
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Just you can be walking along. Then you like sort of gives out, and you go hang on a second but it’s worth it.
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I mean II would do this a million times over, just to feel the way that I do now.
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So my kids walk down the hallway, and I took my compression off the other night after had a shower, and I was about to change, and my 6 year old walks up to me, and he says, Oh, Mom, look at your Bobby legs, so and that just my heart I couldn’t
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deal with it. Put me into tears, and not for a bad reason, but the fact that my kids are acknowledging through that, you know, Mom’s got a whole new lease on life.
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I can go down the slide with my daughter like it’s just yeah getting a little bit tier.
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Yeah, it’s it’s a huge deal, you know.
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Hmm!
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I’m still young myself. My kids are still young, and now I’m able to keep up with them.
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So it’s yeah. Wouldn’t change anything.
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It’s brilliant.
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That’s. And would you like to speak to that misty about post surgical recovery, or what you found surprising about the recovery?
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Post surgery, recovery. The worst was definitely lower legs.
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I got the red hot poker nerve pains throughout the night.
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And I found the only way to deal with that was to walk it off.
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There was no pain pill that I had, that I could that could get rid of that nerve pain.
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Yeah.
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You can only walk that off recovery for also for host areas.
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Oh, that was hard. I had some very, very large live homes on the backs of my sides, at the back of my knees I had softened everything up so it was definitely, surgically ready but you sit on the backs of your thighs.
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You use the backs of your thighs to get up every toilet, break, use the backseer size.
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Post areas was just awful, I made sure, for the 5 days I took my pain relief regulate from the with regular.
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Everything was regular, and then at 5 days I weaned off as required.
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Yup!
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Take your pain. Relief. Keep your fluids up, keep walking.
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It’s scary for the first one, and after that you realize that, hey?
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I can do this, and my live medium was bad. Mine was awful.
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I think you’re always pretty awful, too, Christie.
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Hmm!
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Yeah, absolutely. I think, just adding to what you said about the leg pain in the middle of the night something that you don’t expect, and that I really got with this surgery more than the others is goosebumps.
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Hmm!
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It feels like someone has a roller full of needles and just runs it down your legs.
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They’re spicy. They don’t hurt so goose bones are not a fun time straight off to.
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So in regards speaking about record, do you have any sense on how long it will take to fully recover?
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And whether you will need to always wear compression.
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H area is very different. So by 2 weeks with the last 3 surgeries I was driving, I was up and about moving.
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I had no issues. My husband was 5 at the time for the last 3, surgeries we lived in.
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Brisbane he would leave awake after I got home from hospital, and I was totally fine.
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No worries this one. However, we live in the middle of nowhere, now in Wa, and he’s currently home.
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He’s taking the last rusted ship off, because I just can’t do anything so I’ve just been sort of moving around the house.
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I’m not driving yet, because my knees and my ankles just won’t allow me, and I’m not risking it.
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So recovery is definitely a big thing. So I’m a dog truck operator over here in mining, and I currently have until the sixth of July off.
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However, I will not be going back into a truck until August, because it’s not worth the risk of operating heavy machinery when I’m not fully recovered, and I know that my muscles are not going to be healed.
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By that time.
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Yeah, can you just reiterate for us, Christie, for those people that are just joining us?
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Huh!
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Now, how far post surgery are you?
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Yeah.
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So I am 16 days at the moment. Post my last surgery, and that was my lowers.
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Yes, for? Yeah.
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Yeah, so it’s still quite new. Okay? Yeah, yeah. Would you like to add anything?
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There, Misty!
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For me. I found that I could drive in 2 weeks, which May, I could drive short distances.
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Yeah.
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I’m retiring, so I don’t have to go back to a job.
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Thank goodness, I do have volunteer work. I did leave until the third week to be driving into the hospital that I do my volunteer work at the first 5 days were horrible.
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Hmm!
00:23:17.000 –> 00:23:23.000
After that everything just improves. I was walking, and I was going for long walks within a couple of weeks.
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Yeah, outside 2 weeks. You’re you’re fully mobile.
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That was with my Lowers has a procedures.
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I just recovered faster. That each operation seemed to remove more inflammation so that I could recover better for the next operation.
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It was quite remarkable.
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And always compression for me. Probably I’ve got 40 plus years of damage to my tissues.
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My lower ankles. Have a saggy, baggy bit, because my angles were I would speak, and I want to keep them under control.
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So I expect to be wearing fast to compression most of the time for the rest of my life.
00:24:15.000 –> 00:24:19.000
But that’s me. Younger people with younger skin.
00:24:19.000 –> 00:24:20.000
Yeah, of course.
00:24:20.000 –> 00:24:28.000
Yeah, I I’ll be doing compression for about. So I got to the point before this last surgery that I was able to go without compression.
00:24:28.000 –> 00:24:29.000
Hmm!
00:24:29.000 –> 00:24:34.000
Sorry. There was quite a gap between my last surgery in November, and then to June.
00:24:34.000 –> 00:24:49.000
So around march! I was able to have full days without any compression, and I was totally fine, but in saying that I was going to the gym 6 days a week, and the types that I wear to the Gym.
00:24:49.000 –> 00:24:50.000
Hmm!
00:24:50.000 –> 00:24:52.000
They are compressive types. So I wasn’t just completely going with that.
00:24:52.000 –> 00:24:58.000
And just, you know, letting my legs fly in the wind, cause it’s I’m still got loose skin on my sides.
00:24:58.000 –> 00:24:59.000
Hmm!
00:24:59.000 –> 00:25:07.000
It’s not comfortable, so I do always have pants or shorts, or something on, at least to hold everything together while it is still healing.
00:25:07.000 –> 00:25:11.000
Yeah. Welcome. Ana.
00:25:11.000 –> 00:25:18.000
Thank you so much for joining us. I hope everything with you as well.
00:25:18.000 –> 00:25:29.000
Oh, we we can’t hear. You do need to unmute.
00:25:29.000 –> 00:25:30.000
Okay, no, I still can’t hear you. Unfortunately, I know we’re just speaking about at the moment.
00:25:30.000 –> 00:25:46.000
Recovery and compression. So when you are sorted that jump in anytime, did you wanna add something there, Misty?
00:25:46.000 –> 00:25:59.000
I did. Yes, sorry. It’s fully recover. I would say, from each operation up to 12 months specially, especially for we’ve got larger areas.
00:25:59.000 –> 00:26:11.000
Yes. Yeah. Yeah. Great point. Okay. Now, did anyone have lymphedema as well as lymphedema?
00:26:11.000 –> 00:26:12.000
Finally, if you had lymphedema, did it help your swelling fate?
00:26:12.000 –> 00:26:20.000
It would take up to 12 months to fully recover. Hi!
00:26:20.000 –> 00:26:25.000
Did anyone wanna answer that? If you have lymphedema as well as lipoedema, or speak to that?
00:26:25.000 –> 00:26:35.000
I can. So I secondary like, but not primary, and guess initially, when I started I was very, very swollen because of the secondary light.
00:26:35.000 –> 00:26:40.000
Lymphedyema, the treatment and the compression has helped did help with that swelling.
00:26:40.000 –> 00:26:50.000
Helped to reduce it plus the MLD treatment. But again, that secondary, that’s not primary lymphedema.
00:26:50.000 –> 00:26:51.000
Okay.
00:26:51.000 –> 00:26:58.000
I myself don’t suffer with lymphedema, but there are ladies that have gone through the same surgery journey as us, and they have suffered with lymphedema.
00:26:58.000 –> 00:27:09.000
Also, as well as lipoedema, and it has improved their quality as well, so they do wear their compression, they do their daily.
00:27:09.000 –> 00:27:15.000
Ml. Date. You know the self. Ml. Date. They do everything they need to do.
00:27:15.000 –> 00:27:24.000
All that conservative care, and it has definitely helped keep that advice for them and make them more comfortable.
00:27:24.000 –> 00:27:29.000
Okay, amazing.
00:27:29.000 –> 00:27:38.000
We have another question coming through. Did you have to lose weight before having the extraction surgery safely?
00:27:38.000 –> 00:27:42.000
If so, how did you manage that?
00:27:42.000 –> 00:28:03.000
I myself didn’t necessarily need to lose weight. I wanted to, and I was successful to an extent, but most of my conservative treatment prey, surgery was to soften the lipoedema that I had this, so I was ready for remove all so i’ve struggled for years trying
00:28:03.000 –> 00:28:19.000
to lose the bottom half, and as much as the web have suffered with lipid damage, they they try and target a certain area, thinking, you know, II can do this, and nothing shifts so I was quite successful, losing it on the top half of my body.
00:28:19.000 –> 00:28:22.000
And my waist and my stomach, and I had no problems.
00:28:22.000 –> 00:28:25.000
But as far as Hip’s down I couldn’t do it.
00:28:25.000 –> 00:28:30.000
So it was. It was just a case of softening for me.
00:28:30.000 –> 00:28:34.000
II needed to lose weight. Always a hundred 10 kilos.
00:28:34.000 –> 00:28:41.000
Dr. Lekich wanted me to lose 15 kilos for surgery, so I lost 25.
00:28:41.000 –> 00:28:46.000
I did very low. Keto, extraordinarily effective.
00:28:46.000 –> 00:28:49.000
I lost!
00:28:49.000 –> 00:28:52.000
I think it was 10 centimetres off my calves.
00:28:52.000 –> 00:28:58.000
I forgot to measure my size. I don’t know why, and I did that with weight loss.
00:28:58.000 –> 00:29:01.000
So if I can lose 10 cm off my calf, that’s a lot of fat gone because it’s gone everywhere else as well.
00:29:01.000 –> 00:29:09.000
I was still enormous in total. Now I’ve lost 4 with the surgery.
00:29:09.000 –> 00:29:12.000
So 11 from surgery. Yeah. The 20 ninth mine.
00:29:12.000 –> 00:29:19.000
Thank you very much. Yeah. I needed to.
00:29:19.000 –> 00:29:21.000
And I did.
00:29:21.000 –> 00:29:28.000
Yeah, okay, thank you for that.
00:29:28.000 –> 00:29:38.000
If one might be a question for Christie, specifically with having small children, how are you carping with looking after your children whilst in recovery?
00:29:38.000 –> 00:29:39.000
I’m really, really lucky. My kids, they’re amazing.
00:29:39.000 –> 00:29:45.000
So I mean kids are full on at the best of times.
00:29:45.000 –> 00:29:54.000
And especially with having the 3. The middle child has some serious middle child syndrome, and just love stirring trouble every chance he gets.
00:29:54.000 –> 00:29:59.000
But look! They help me as much as I can when it comes to school pickup and drop off, and things like that with recovery.
00:29:59.000 –> 00:30:06.000
I’ve been really, really lucky in the sense that my husband is just sorry.
00:30:06.000 –> 00:30:11.000
Helpful guys above and beyond everything, as far as cooking, cleaning the house.
00:30:11.000 –> 00:30:24.000
The kids have our neighbors as well, who have been incredible if they need to be taken to or from school, which is a whole 2 blocks away, they take them we’ve sort of just got our little family here, we don’t.
00:30:24.000 –> 00:30:29.000
We don’t have anyone else to rely on, so we just do the best that we can in active are very understanding of that.
00:30:29.000 –> 00:30:36.000
So my oldest is 9, and he is constantly checking on me to make sure I’m okay.
00:30:36.000 –> 00:30:39.000
If I need anything. My 5 year old tries to make me coffee.
00:30:39.000 –> 00:30:45.000
She’s a gem that, cool. It’s not worth the trouble, but you know that’s great.
00:30:45.000 –> 00:30:47.000
Absolutely.
00:30:47.000 –> 00:30:59.000
It’s hard having kids and trying to recover yourself, especially when you’re so used to doing everything, putting the trust in the rest of the family and just being able to let go is super important.
00:30:59.000 –> 00:31:04.000
But you definitely need a really strong.
00:31:04.000 –> 00:31:07.000
That help. You need help when you’re going through this. That’s all I can say.
00:31:07.000 –> 00:31:09.000
Yeah.
00:31:09.000 –> 00:31:13.000
You can do it yourself, but it’s gonna make it harder.
00:31:13.000 –> 00:31:16.000
So it’s worth having to chat with your kids.
00:31:16.000 –> 00:31:22.000
If you’re going through this and just explaining to them and being open that you know it’s not an easy process, and it is painful.
00:31:22.000 –> 00:31:26.000
And you do need that help, and it makes them feel like they’re part of the journey, too.
00:31:26.000 –> 00:31:37.000
Yeah, definitely. And, Missy, do you wanna add to that who you utilize as a?
00:31:37.000 –> 00:31:38.000
No!
00:31:38.000 –> 00:31:39.000
My husband was extraordinary. Sorry I can’t hear him out.
00:31:39.000 –> 00:31:43.000
I’ve got more surgery coming up. He did.
00:31:43.000 –> 00:31:48.000
Everything was just whilst working full time.
00:31:48.000 –> 00:31:54.000
But I have no kids. I have 2 cats he looked after the cat. He fed me.
00:31:54.000 –> 00:32:00.000
He did everything for me.
00:32:00.000 –> 00:32:04.000
Oh, that’s wonderful!
00:32:04.000 –> 00:32:11.000
Alright. What about what were your must have pre and post surgery?
00:32:11.000 –> 00:32:16.000
Okay. Electrolyte is definitely a huge one.
00:32:16.000 –> 00:32:27.000
Well for me. It was so before any of the lipid removal surgeries I would get severe legitters of a 9 times as soon as I like.
00:32:27.000 –> 00:32:29.000
Let restless legs in here. I’m assuming I laid down.
00:32:29.000 –> 00:32:37.000
I felt like that, like, okay, it’s time to be uncomfortable now, and that’s something that I really wanted to avoid after surgery.
00:32:37.000 –> 00:32:44.000
And electrolyze helped. That is, an absolute must have and decent compression.
00:32:44.000 –> 00:32:53.000
The pine that you get can almost be settled by the compression in the sense that it works.
00:32:53.000 –> 00:33:00.000
It works like a weighted blanket. So for me, this surgery, my biggest savvy was so I would lay out of the night time.
00:33:00.000 –> 00:33:08.000
I’d have my mode wrapped around my lowers around my ankle specifically just to help that swelling, and where the drainage rolls are.
00:33:08.000 –> 00:33:17.000
And then I put on my flat needs, or whatever compression I’m wearing that night to bed after I’ve had a shower and I’m all fresh and clean.
00:33:17.000 –> 00:33:22.000
And then over the top of that I wear my comfy waves, and they are just like a hugging blanket.
00:33:22.000 –> 00:33:26.000
They just take all the pain away. They make you so much more comfortable.
00:33:26.000 –> 00:33:31.000
But yeah, definitely good compression. And that’s that was my main thing for me.
00:33:31.000 –> 00:33:32.000
Christine’s top tips. Right? That’s awesome.
00:33:32.000 –> 00:33:34.000
Yeah.
00:33:34.000 –> 00:33:36.000
And what about you, Misty?
00:33:36.000 –> 00:33:42.000
For me, absolutely compression, but it has to fit.
00:33:42.000 –> 00:33:47.000
It has to fit the post. Surgery signs not your pre-surgery signs.
00:33:47.000 –> 00:33:53.000
You need it tight enough so that you’re not going to get that massive swelling.
00:33:53.000 –> 00:33:58.000
So every time I had a surgery my compression was pre-adjusted.
00:33:58.000 –> 00:34:04.000
My class twos, I would be stitching up the back of the legs.
00:34:04.000 –> 00:34:05.000
I look like a proliferate thrill.
00:34:05.000 –> 00:34:14.000
Neck, lizard with the extra bit on the back, I would stitch up the legs so that they would be fitting perfectly for post surgery.
00:34:14.000 –> 00:34:22.000
Then that would be tight on top of that I always wore my my firm Pharaoh wraps from the feet up to the side, depending upon where the surgery was.
00:34:22.000 –> 00:34:32.000
If it was, bask and settle bags, I would then wear 2 eggs.
00:34:32.000 –> 00:34:43.000
You bike shorts a size smaller, so that they were really tight on top for, and that was anywhere from 2 to 6 weeks, depending upon.
00:34:43.000 –> 00:34:47.000
And that was 24 HA day, depending on what was our operated on.
00:34:47.000 –> 00:34:48.000
Yeah.
00:34:48.000 –> 00:34:56.000
But it had to be firm to prevent that swelling, and again elect lights I’m very sensitive to clearing my electrolytes.
00:34:56.000 –> 00:34:59.000
So they’re really, really important. And of course, pain, relief.
00:34:59.000 –> 00:35:00.000
Yeah.
00:35:00.000 –> 00:35:03.000
Yeah.
00:35:03.000 –> 00:35:04.000
Okay.
00:35:04.000 –> 00:35:12.000
Yeah. Happy. Happy. Compression sitting for the expected post, stopsizing not your pre-OP to allow for swelling.
00:35:12.000 –> 00:35:18.000
It makes it worse. I never got that post-OP swelling.
00:35:18.000 –> 00:35:21.000
And how are you going with your microphone? Lovely!
00:35:21.000 –> 00:35:23.000
Hi! Is it working?
00:35:23.000 –> 00:35:24.000
Yeah.
00:35:24.000 –> 00:35:25.000
Oh, yes, we can hear you. Welcome!
00:35:25.000 –> 00:35:34.000
Hello! I’m trying to work slowly see if I can understand my ex seen. I’ll do quick and throw apologies for joining late.
00:35:34.000 –> 00:35:35.000
Not at all.
00:35:35.000 –> 00:35:37.000
My name’s Ana. I’m from New Zealand.
00:35:37.000 –> 00:35:51.000
I traveled over 4 4 surgeries to Australia with my mom is my caregiver, and I’ve had nearly 19 latest out in all of my surgeries were last year.
00:35:51.000 –> 00:35:56.000
My must have for surgery would be vibration.
00:35:56.000 –> 00:36:22.000
Plate your custom to class compressions, and also, if you could get a they’re quite cheap around 80 $90 and I’d always get a size that would fit me now in the next size down, so that definitely help with and also my leg pumps the
00:36:22.000 –> 00:36:23.000
Yeah, definitely.
00:36:23.000 –> 00:36:27.000
excel. 9 league pump, and then, if we go onto the detail, probably for you’re not overnight, stay at hospital.
00:36:27.000 –> 00:36:46.000
And definitely loose clothing, a couple of 19 nineties, dark colored nineties, and also for post up, because you don’t really want anything to touch on your body.
00:36:46.000 –> 00:36:51.000
Thank you so much, Ana. Great, great to have you tonight.
00:36:51.000 –> 00:36:59.000
We have a question for Misty. Did you have lipoedema removed from your stomach?
00:36:59.000 –> 00:37:08.000
And was this diagnosed easily by doctor? If so, did this make a drastic difference to back pain?
00:37:08.000 –> 00:37:12.000
Yes, he said, I had like zoom room. My stomach.
00:37:12.000 –> 00:37:16.000
Yes. He removed the lipoedema for my on my stomach.
00:37:16.000 –> 00:37:21.000
On the nineteenth of March. It is made no difference to my back pain, but it’s only because I’ve spoken to my surgeon.
00:37:21.000 –> 00:37:29.000
I’m having a the conferential lapectomy, and 2 weeks referred on from Dr.
00:37:29.000 –> 00:37:45.000
Leakage from all my loose skin. It’s only booked to him that I have learnt that every woman who has born children has separation of the abdominal muscle been a nurse for 40 years.
00:37:45.000 –> 00:37:49.000
I didn’t know that that affects you back.
00:37:49.000 –> 00:37:54.000
It weakens your core muscles so that you can’t support your lower back.
00:37:54.000 –> 00:38:05.000
So when I get my so and financial life takes me down, I’m expecting my back pain to improve.
00:38:05.000 –> 00:38:08.000
Okay, right alright. And can we just clarify again for those just joining us?
00:38:08.000 –> 00:38:19.000
What stage of lipoedema were h of you before you began your surgical journey?
00:38:19.000 –> 00:38:21.000
Me!
00:38:21.000 –> 00:38:26.000
Stage. 4. Misty. Yeah.
00:38:26.000 –> 00:38:27.000
Yeah.
00:38:27.000 –> 00:38:32.000
Early stage for the lymphatic flip weren’t permanently damaged.
00:38:32.000 –> 00:38:33.000
Page 2.
00:38:33.000 –> 00:38:36.000
Okay. And you sorry you said Christie. Stage 2. And you, what about you, Ana?
00:38:36.000 –> 00:38:43.000
I was between 2 and 3. Unfortunately, Covid delayed my surgery. Procedy.
00:38:43.000 –> 00:38:46.000
I don’t remember that.
00:38:46.000 –> 00:38:49.000
Okay.
00:38:49.000 –> 00:38:55.000
Did any of you have to have a blood transfusion?
00:38:55.000 –> 00:39:02.000
I had 3. My first surgery when I had 8.1 litres removed.
00:39:02.000 –> 00:39:09.000
I was one of those faintty princesses. The next morning my haemoglobin was in the low eighties.
00:39:09.000 –> 00:39:14.000
I had 2 units that day was discharged in the evening.
00:39:14.000 –> 00:39:21.000
Amazing blood makes you feel fantastic. And again on Friday, my hemoglobin dropped.
00:39:21.000 –> 00:39:29.000
I need another 2 units, and when I had my buttocks inside battles done, which was a 5.6 liter removal.
00:39:29.000 –> 00:39:30.000
Again I dropped my hemoglobin and needed temporary units.
00:39:30.000 –> 00:39:38.000
Transfused. So yeah, I’ve had 6 years.
00:39:38.000 –> 00:39:43.000
Okay. Anyone else. Christiana? Sorry.
00:39:43.000 –> 00:39:44.000
Sorry, Misty. Did you want to add something else?
00:39:44.000 –> 00:39:52.000
No, no! Oh, it makes you feel fantastic. You suddenly come alive halfway through the unit, feeling like death warmed up, and then, Oh, my God!
00:39:52.000 –> 00:39:56.000
I’m back. It’s amazing.
00:39:56.000 –> 00:39:57.000
Okay.
00:39:57.000 –> 00:40:11.000
Get a couple of on, and fusions, which is different, but that definitely, I think, speed up my recovery I’m not a big meat eater, so that was probably part of the reason for that.
00:40:11.000 –> 00:40:17.000
But yeah, I definitely felt amazing after those 2.
00:40:17.000 –> 00:40:18.000
Yeah.
00:40:18.000 –> 00:40:33.000
Yeah, yeah, I had the F injections also, so that they put through the bag on and it definitely helped. But again, with the whole red meat thing the Ana was just talking about, I found that flares my lipoedema sorry it’s my inflammation.
00:40:33.000 –> 00:40:39.000
Goes through the roof when I have redme, which is so hard for me, because I love red meat.
00:40:39.000 –> 00:40:42.000
Well, it’s so interesting, how it’s so different for everyone.
00:40:42.000 –> 00:40:43.000
Hmm!
00:40:43.000 –> 00:40:50.000
Hi, I’m a red meat person makes me feel brilliant.
00:40:50.000 –> 00:40:51.000
Hmm!
00:40:51.000 –> 00:40:55.000
So different for everyone. Okay, can we speak to Medicare rebates?
00:40:55.000 –> 00:41:03.000
And what you were able to access, and that will be different for you, Anna, being in New Zealand.
00:41:03.000 –> 00:41:23.000
So maybe let’s start with Christie, and then misty, and then ask him cover from the New Zealand side of things.
00:41:23.000 –> 00:41:24.000
Hmm!
00:41:24.000 –> 00:41:25.000
So sort of went into the whole, the whole surgery journey, not expecting anything back to be honest, so getting back the little bit that we do get back from Medicare is a huge bonus, so it’s nothing drastic.
00:41:25.000 –> 00:41:32.000
It’s not a huge amount, but it’s something.
00:41:32.000 –> 00:41:33.000
And at the end of the day, I think in total, I get back between Dr.
00:41:33.000 –> 00:41:38.000
Luggage himself, and the, first I think it’s just around $1,000 total back out of my total.
00:41:38.000 –> 00:41:43.000
Surgery, expenses, and that generally covers my accommodation.
00:41:43.000 –> 00:41:50.000
So I take that as a win.
00:41:50.000 –> 00:41:52.000
Yeah.
00:41:52.000 –> 00:41:53.000
Right and.
00:41:53.000 –> 00:42:00.000
I I’ve never looked at it properly, because I thought it was absolutely pathetic.
00:42:00.000 –> 00:42:01.000
It is.
00:42:01.000 –> 00:42:02.000
But I’m I’m in a situation where I don’t have to count.
00:42:02.000 –> 00:42:03.000
Penny, so I don’t have to worry about it.
00:42:03.000 –> 00:42:21.000
It’s a very small proportion of it. I yeah. I’ve spent a fortune in this last year and a half, and very little has come back from Medicare.
00:42:21.000 –> 00:42:22.000
And it.
00:42:22.000 –> 00:42:24.000
And you, Anna. Sorry, Misty.
00:42:24.000 –> 00:42:33.000
Sorry. I was just gonna say, and that’s the MLD treatment I get.
00:42:33.000 –> 00:42:34.000
Yeah.
00:42:34.000 –> 00:42:37.000
About 4 months is in free from private health cover. So I get some from private health as well.
00:42:37.000 –> 00:42:39.000
I don’t know much.
00:42:39.000 –> 00:42:42.000
Yeah.
00:42:42.000 –> 00:42:43.000
Sorry.
00:42:43.000 –> 00:42:44.000
And for you. Anna, yeah.
00:42:44.000 –> 00:42:51.000
Preoctus, some ladies in New Zealand that have insurance have managed to get those covered.
00:42:51.000 –> 00:42:59.000
I unfortunately did not have insurance, and so my pre-optics were not covered, and also none of us.
00:42:59.000 –> 00:43:06.000
We’ll cover it, either.
00:43:06.000 –> 00:43:07.000
So!
00:43:07.000 –> 00:43:09.000
And it.
00:43:09.000 –> 00:43:11.000
Something that we’re working hard to change.
00:43:11.000 –> 00:43:13.000
Yeah.
00:43:13.000 –> 00:43:19.000
Okay, did any of you manage to do all of the surgery recover from the surgery, and also maintain a full-time job?
00:43:19.000 –> 00:43:30.000
I heard the phrase the other day that managing lipoedema is a full-time job.
00:43:30.000 –> 00:43:31.000
It is.
00:43:31.000 –> 00:43:34.000
Oh, it’s definitely a full-time job trying to manage it.
00:43:34.000 –> 00:43:37.000
I was lucky enough. My first 3 surgeries.
00:43:37.000 –> 00:43:47.000
I was stay at home, mom. So we just moved down to Brisbane from in North Queensland when I was initially diagnosed.
00:43:47.000 –> 00:43:49.000
So at that point in time I took that to my advantage, and had my first 3 surgeries done.
00:43:49.000 –> 00:44:02.000
So this surgery has been the first one that I’ve been working during, and the months that I’m taking off, I’m already losing my mind.
00:44:02.000 –> 00:44:04.000
So it’s gonna be hard for full time.
00:44:04.000 –> 00:44:06.000
People, for sure.
00:44:06.000 –> 00:44:09.000
Yeah, yeah.
00:44:09.000 –> 00:44:12.000
For me. I’m very privileged. I’m retired.
00:44:12.000 –> 00:44:29.000
I was able to put the sort of up to 6 h if treatment, and lipoedema based on life into effect every day I’m the unusual one.
00:44:29.000 –> 00:44:31.000
I know a very, very few people who could do that.
00:44:31.000 –> 00:44:40.000
It was exhausting, because my pre- treatments, my post-toc treatment. Then I’d gone immediately into pre-opstop.
00:44:40.000 –> 00:44:43.000
That was all of last year. So last year was all about me.
00:44:43.000 –> 00:44:49.000
I get a week or 2 where I could slow down, and between surgeries, and that was it.
00:44:49.000 –> 00:44:54.000
That’s rare. I don’t really know if anybody else has been able to do that.
00:44:54.000 –> 00:44:55.000
Yeah.
00:44:55.000 –> 00:44:57.000
So I’m not gonna give you any.
00:44:57.000 –> 00:45:09.000
I hey? 2 weeks off per surgery, so generally a week and a half would be overseas and Australia in incoming vet.
00:45:09.000 –> 00:45:20.000
To New Zealand. Then I would be online, and being with my laptop and I got a great laptop table where I’d work my third week post.
00:45:20.000 –> 00:45:21.000
Stop, and then I would be back in the office generally.
00:45:21.000 –> 00:45:33.000
The fourth week, instead of trying to do maybe 2 days on the office as well.
00:45:33.000 –> 00:45:43.000
So I manage to make it work with an office job around surgery in treatment and protocol, and lick pump MLD everything like that.
00:45:43.000 –> 00:45:48.000
So I am actually feeling a bit burnt out now, sort of like.
00:45:48.000 –> 00:45:51.000
A year later, reflecting back and thinking, How did I do it?
00:45:51.000 –> 00:45:59.000
But you just keep throw.
00:45:59.000 –> 00:46:05.000
Did any of you experience your lipoedema of that coming back?
00:46:05.000 –> 00:46:11.000
It’s too soon to tell. I do still have some, no jewels, and some like theeem effect that I can feel.
00:46:11.000 –> 00:46:21.000
But, as I maintain my conservative treatments every day I wear my compressedion, I eat carnivore.
00:46:21.000 –> 00:46:23.000
I don’t eat any carbohydrates.
00:46:23.000 –> 00:46:37.000
I have regular mld treatment. I use my pump every night I’m hoping that keeps it at bay, but I do have the facts out there, and I know that I’ve seen the facts so can grow again.
00:46:37.000 –> 00:46:42.000
If I go back on my card, not my cards, any cards, I refuse to do it.
00:46:42.000 –> 00:46:47.000
Nobody’s ego is worth my help. So I won’t see anybody’s food.
00:46:47.000 –> 00:46:57.000
There is a risk for me. Yes, because I had bad lipoedema, and it’s very, very strong in both lines of my family.
00:46:57.000 –> 00:47:06.000
Okay. I think it’s important to remember that using these surgeries going into it with the thought that once the surgery is done, that’s it.
00:47:06.000 –> 00:47:08.000
You can just live it completely. Normal life, it’s not gonna happen you need to go in it with the sensor.
00:47:08.000 –> 00:47:17.000
Okay, these surgeries are done now, like for myself, this has given me a baseline and a fresh start.
00:47:17.000 –> 00:47:29.000
So now I need to continue on with the right choices to maintain this disease, because at the end of the day I’ve had my lights down now, but there is still potential for it to come back and type over my arms.
00:47:29.000 –> 00:47:46.000
So there’s a small bit in the tops of my arms now there will be a affected if I just went off the rails and went on some big cob load and decided to just throw everything that I’ve learned over the last few years out the window it’s not gonna work in my
00:47:46.000 –> 00:47:47.000
Hmm!
00:47:47.000 –> 00:47:50.000
phone so you can’t just go in expecting. Okay, this is it.
00:47:50.000 –> 00:47:53.000
This is not necessarily a quick fix, but this is a fix.
00:47:53.000 –> 00:47:58.000
Now I can go on living a somewhat normal life. It’s not just you need to do your diet.
00:47:58.000 –> 00:48:04.000
You need to keep up the conservative care you need to keep your body moving and maintain a healthy lifestyle.
00:48:04.000 –> 00:48:11.000
You can’t just throw everything away after spending what is a small fortune on yourself to make yourself better?
00:48:11.000 –> 00:48:12.000
Hmm!
00:48:12.000 –> 00:48:13.000
Yeah.
00:48:13.000 –> 00:48:28.000
You can’t just give it all up to go back to what used to be just doesn’t work.
00:48:28.000 –> 00:48:29.000
Yeah, absolutely.
00:48:29.000 –> 00:48:30.000
Yeah, yeah.
00:48:30.000 –> 00:48:33.000
Yeah, it’s a massive investment. And I remind myself every day to honor that investment that I’ve put into myself that my husband put into me as well. It’s part priority.
00:48:33.000 –> 00:48:34.000
And often as well. I had lots of as well, and compression definitely helps with that.
00:48:34.000 –> 00:48:43.000
And it’s more of a lifetime of compression.
00:48:43.000 –> 00:48:51.000
So I’m definitely making sure that after surgery, you know, I’m still wearing compression that might not be 24 HA day anymore.
00:48:51.000 –> 00:48:55.000
It might be, either during the day or as soon as I get home I’ll pop them on and sleep on them regular email day.
00:48:55.000 –> 00:49:07.000
Still leak pumping, and things like that so definitely maintaining into the skill of health as well.
00:49:07.000 –> 00:49:08.000
Yeah.
00:49:08.000 –> 00:49:16.000
Yes. Okay. There’s quite a few questions geared towards conservative management.
00:49:16.000 –> 00:49:31.000
What was you? So from that? And then at what point did you decide that surgery was the option for you rather than continuing only with conservative management?
00:49:31.000 –> 00:49:35.000
I was quite active. I’ve always been a very active person.
00:49:35.000 –> 00:49:56.000
I did bell ages, you know you name it. I did it, and when this is started to take over my mobility in my ability to do things at the gym, running going up is jumping onto a box.
00:49:56.000 –> 00:50:08.000
Just simple things like that that I used to type for granted was starting to get really hard getting up and down off the ground was also becoming really difficult.
00:50:08.000 –> 00:50:17.000
And so I think if I don’t do something now, this is really going to unpicked my joints as well.
00:50:17.000 –> 00:50:23.000
Even my stance has changed now since having the surgery.
00:50:23.000 –> 00:50:25.000
That we stand tall.
00:50:25.000 –> 00:50:27.000
Yeah.
00:50:27.000 –> 00:50:31.000
Just don’t have that. Wait!
00:50:31.000 –> 00:50:35.000
Yeah, you just feel so much lighter, and it’s crazy feeling.
00:50:35.000 –> 00:50:37.000
Us, not having lost legs.
00:50:37.000 –> 00:50:41.000
Hmm! It’s just phenomenal.
00:50:41.000 –> 00:50:54.000
And conservative management definitely does help. I remember, you know, I would always come home from training the gym and my leagues would feel like they’re on fire.
00:50:54.000 –> 00:51:11.000
And sort of like humming sensation, and I’d feel so swollen and engorged, and I just had no idea this was back when I knew didn’t know what lipoedema was, and it really starts to impact your life.
00:51:11.000 –> 00:51:19.000
But as soon as I found out that I had lipoedema, I worked, found a local email D, and started working with her high syrup.
00:51:19.000 –> 00:51:24.000
If you’re watching, and started working on a Conservative management plan.
00:51:24.000 –> 00:51:29.000
So I started having compression garments, the email day massages.
00:51:29.000 –> 00:51:43.000
And then my League started to feel better and not so, and gorged, and still all the time, so conservative management definitely does help with this disease.
00:51:43.000 –> 00:51:44.000
Yeah.
00:51:44.000 –> 00:51:48.000
Yeah, I have to agree. I am ultra high school. I was huge on my sports.
00:51:48.000 –> 00:51:57.000
I played water polar. I was always swimming, loved running, did every sport under the sun was constantly moving.
00:51:57.000 –> 00:52:01.000
As I got older the hormones kicked in, as they do when when you’re a teenager, and then having kids to just progress it massively.
00:52:01.000 –> 00:52:14.000
Once I had my third child. She just just shade and destroy me.
00:52:14.000 –> 00:52:15.000
But the whole lines that I had with her. They destroyed me.
00:52:15.000 –> 00:52:25.000
So my bottom half just blew out, and the pain that I had from the white of my bum was incredible.
00:52:25.000 –> 00:52:36.000
So my my bum, before surgery came up nearly to the middle of my back, just all the lipoedema are built up on the shelf, so I had nearly a square bomb the way that it sat.
00:52:36.000 –> 00:52:49.000
I couldn’t bend my back physically backwards actually couldn’t fit on one of the rides.
00:52:49.000 –> 00:52:50.000
Hmm!
00:52:50.000 –> 00:52:58.000
At moving. Well, the bit that comes down over would not clip through my size, so my thoughts were just so big, and that was that was a huge breaking point for me, because I tried so hard to lose weight. But I was doing everything wrong.
00:52:58.000 –> 00:53:07.000
What I was trying wasn’t working. As soon as I changed to Keto Carnivore.
00:53:07.000 –> 00:53:23.000
Difference was incredible. So White, without trying, actually started falling off.
00:53:23.000 –> 00:53:24.000
Hmm!
00:53:24.000 –> 00:53:25.000
I started doing software exercises, using weights, but without the without using my body so much, not putting so much force on my body.
00:53:25.000 –> 00:53:29.000
And it was just. It was a lot easier for me. So my movements changed.
00:53:29.000 –> 00:53:34.000
I could walk without feeling like I constantly had on lead boots.
00:53:34.000 –> 00:53:38.000
My carbs were not getting as so as they were before.
00:53:38.000 –> 00:53:52.000
It just the information decreased and made it a lot easier to move, although that back pain was still there, because my top half was so heavy throughout my size and my bomb in my shelf.
00:53:52.000 –> 00:53:55.000
It did help with the inflammation gone!
00:53:55.000 –> 00:54:00.000
So I think diet is definitely huge for conservative care.
00:54:00.000 –> 00:54:06.000
You need to be really careful what you putting in your body, and it will tell you. If it’s not right, you’ll know, because you won’t be comfortable.
00:54:06.000 –> 00:54:07.000
Yeah, yeah.
00:54:07.000 –> 00:54:09.000
So!
00:54:09.000 –> 00:54:10.000
Did you want to add them misty?
00:54:10.000 –> 00:54:14.000
Now you can. I’m sorry, I’ve been so engrossed in your answers. Christie and Anna.
00:54:14.000 –> 00:54:16.000
I forgotten the question.
00:54:16.000 –> 00:54:17.000
Yeah.
00:54:17.000 –> 00:54:19.000
Just with conservative management, mistake.
00:54:19.000 –> 00:54:33.000
At what point did you decide that surgery was an option for you, or you’re going to opt for surgery rather than continuing only with conservative management.
00:54:33.000 –> 00:54:46.000
It was within the first month, because I found that going on to the really really low Capito, I found it very easy to follow.
00:54:46.000 –> 00:54:47.000
Yeah.
00:54:47.000 –> 00:54:49.000
I’m very black and white. If you give me a set of rules I’ll follow it so Kito for me was absolutely perfect.
00:54:49.000 –> 00:54:55.000
My pain stopped, I could see that my swelling was reducing the email.
00:54:55.000 –> 00:55:10.000
Treatments when I started them in May out to shift things more, I walk the pump, and everything just progressed in such a way. I felt so much better, and I could see that I was gonna stick to the way of eating for the rest of my life.
00:55:10.000 –> 00:55:15.000
And that’s what made the difference for me. Yup cleared my head so that I could now think I could function.
00:55:15.000 –> 00:55:20.000
I could do minor exercise. I’m a bit contrary.
00:55:20.000 –> 00:55:27.000
Sports was compulsory at school, so I refused to do it.
00:55:27.000 –> 00:55:29.000
Don’t know how I got away with it, but I never did.
00:55:29.000 –> 00:55:30.000
I just stand there in the middle of field and not do anything.
00:55:30.000 –> 00:55:35.000
So I’ve been allowed to live my entire life now.
00:55:35.000 –> 00:55:40.000
2 years later I tried to the pool a few times a week for walking.
00:55:40.000 –> 00:55:41.000
I want to go to the gym. I lift weights.
00:55:41.000 –> 00:55:48.000
I enjoy it. We walk every morning. I have no idea who I am anymore.
00:55:48.000 –> 00:55:54.000
It was. The food, with the change of food, changed everything for me.
00:55:54.000 –> 00:55:55.000
Yeah.
00:55:55.000 –> 00:55:59.000
I think I think, too, you get to a certain point.
00:55:59.000 –> 00:56:05.000
You know whether conservative treatment is working and you start to feel such a drastic change.
00:56:05.000 –> 00:56:08.000
Hmm!
00:56:08.000 –> 00:56:09.000
Hmm!
00:56:09.000 –> 00:56:20.000
And like, Miss he said, you know that you can do this, and it gets to a point that you start to see what your life could be lack without having these daily struggles of the lipoedema. So even simple things in winter I don’t know if it affects other people the same way.
00:56:20.000 –> 00:56:21.000
It did me, but I would be so incredibly so so the cold would change.
00:56:21.000 –> 00:56:30.000
How I was feeling, and it hurt more. It just wasn’t comfortable.
00:56:30.000 –> 00:56:33.000
So, and now, like it’s quite cold at the moment.
00:56:33.000 –> 00:56:39.000
Besides the spicy goose bumps, I feel so much better not having the lipoedema there.
00:56:39.000 –> 00:56:40.000
Yeah.
00:56:40.000 –> 00:56:45.000
And differently, and in the winter I would be so cold I would get deep details which I couldn’t.
00:56:45.000 –> 00:56:51.000
Yeah.
00:56:51.000 –> 00:56:52.000
Huh!
00:56:52.000 –> 00:56:53.000
This winter. I’m warm it’s the coldest winter we’ve had for a while.
00:56:53.000 –> 00:56:58.000
I’m warm I don’t know where that came from, either.
00:56:58.000 –> 00:57:04.000
I’m a whole new person. Thanks! And getting rid of the information from the lipoedema.
00:57:04.000 –> 00:57:07.000
That’s amazing.
00:57:07.000 –> 00:57:12.000
Now I almost can’t believe that that hour has flown by.
00:57:12.000 –> 00:57:13.000
Oh!
00:57:13.000 –> 00:57:14.000
Yeah, okay.
00:57:14.000 –> 00:57:20.000
It’s almost 70’clock. Unfortunately, we didn’t get to everyone’s questions.
00:57:20.000 –> 00:57:31.000
However, Christie, Anna, and Misty have very generously shared their social media profiles with us, and they’re actually happy for you to reach out to them if you’d like to do so.
00:57:31.000 –> 00:57:38.000
Directly to talk about their journey more just to end to.
00:57:38.000 –> 00:57:39.000
Not. We wanted to let you know that we have a few.
00:57:39.000 –> 00:57:50.000
A couple more events coming up the lipoedema awareness month in June. You can do that.
00:57:50.000 –> 00:57:55.000
You can review those and register for them on eventbride. I’ve popped the links up here.
00:57:55.000 –> 00:58:01.000
You can also subscribe to our social media channels, walk with freedom. lipoedema.
00:58:01.000 –> 00:58:09.000
Surgical solution.com sign up to our email list so that you’re always in the loop of everything that’s happening.
00:58:09.000 –> 00:58:14.000
Just to finish tonight. Could I ask you, ladies 2 questions?
00:58:14.000 –> 00:58:20.000
H at, because it’s lipoedema awareness month.
00:58:20.000 –> 00:58:33.000
Now, what? Why is awareness important to you? And what advice would you give to women with?
00:58:33.000 –> 00:58:39.000
So? 2. Part question, who would like to go first? Sorry to put you on the spot.
00:58:39.000 –> 00:58:40.000
Yes.
00:58:40.000 –> 00:58:48.000
Why is important thing? Yeah, it’s important to me, because this is really really strong on both sides of my family.
00:58:48.000 –> 00:58:51.000
It almost ended up crippling me.
00:58:51.000 –> 00:59:03.000
I see so many people. What usually, when I’m up having my surgeries, and we stay in Beachfront Motel Hotel.
00:59:03.000 –> 00:59:10.000
We walk along the waterfront, and I see so many people with lipoedema and I just think, don’t be like me.
00:59:10.000 –> 00:59:12.000
Don’t get to stage 4. Don’t get to the point where you can be crippled.
00:59:12.000 –> 00:59:17.000
I want everybody to have the option to have third week early.
00:59:17.000 –> 00:59:18.000
Yeah.
00:59:18.000 –> 00:59:27.000
Or have treatments early, not get to the stage. That I did, because II don’t always surprise me.
00:59:27.000 –> 00:59:33.000
It’s really, really important to share it. I still haven’t been able to bring it up with people that I meet, because it’s never been the right situation.
00:59:33.000 –> 00:59:43.000
And also now I don’t look like I have libraries, so it can be a little bit awkward.
00:59:43.000 –> 00:59:51.000
What advice would I give you? Anybody would be, get a get a formal diagnosis.
00:59:51.000 –> 00:59:56.000
Get a formal diagnosis. It’s a written letter, formal.
00:59:56.000 –> 01:00:00.000
It’s from whichever specialist that you get it from it, then gets into your Gp.
01:00:00.000 –> 01:00:01.000
You can no longer be guestrated if you no longer be told.
01:00:01.000 –> 01:00:07.000
No, you’re just because it doesn’t work for us.
01:00:07.000 –> 01:00:13.000
Get a diagnosis, get a formal diagnosis.
01:00:13.000 –> 01:00:14.000
That’s so true.
01:00:14.000 –> 01:00:24.000
Yeah, I, think I think it’s really important to do things like that and to have a month.
01:00:24.000 –> 01:00:25.000
Hmm!
01:00:25.000 –> 01:00:29.000
That’s specifically about Withadima. It’s just making women aware that they’re not alone.
01:00:29.000 –> 01:00:30.000
Yeah.
01:00:30.000 –> 01:00:31.000
Hmm!
01:00:31.000 –> 01:00:32.000
You know, all these feelings that you’ve had for years.
01:00:32.000 –> 01:00:33.000
You’ve tried, and you’ve tried people of, you know, as Missy said, they’ve always told you.
01:00:33.000 –> 01:00:40.000
No, you’re just overweight, or it’s just your body, or we’re just big bind, or this is how our family is.
01:00:40.000 –> 01:00:45.000
My dad’s side of the family. This is where mine has come from.
01:00:45.000 –> 01:00:46.000
I had family members telling me no, it’s all in your head, you know.
01:00:46.000 –> 01:00:50.000
It’s just how we are. That’s just how we are.
01:00:50.000 –> 01:00:58.000
Once I had my diagnosis and started going through the service, several turning on.
01:00:58.000 –> 01:01:00.000
Hmm!
01:01:00.000 –> 01:01:01.000
Hmm!
01:01:01.000 –> 01:01:07.000
Oh, my God! Like how did we not know about this? So the awareness just needs to get out there once it’s out there more room and realize, you know, Medicare could come to the party?
01:01:07.000 –> 01:01:12.000
We we’re doing this not only for ourselves, but for the future.
01:01:12.000 –> 01:01:18.000
Girls, outdoors, friends, aunties, just people that don’t know we’re giving them an opportunity.
01:01:18.000 –> 01:01:22.000
Yeah. The track to possibly get more help than we’re currently getting, you know.
01:01:22.000 –> 01:01:23.000
Hmm!
01:01:23.000 –> 01:01:24.000
And it’s important just to remember that you’re not alone.
01:01:24.000 –> 01:01:38.000
It’s not just you. We are going through this together, and if you need anything, just reach out to someone that you know, even if we’s us, and you don’t know us on a personal level, just message us like you don’t have to suffer by yourself, what
01:01:38.000 –> 01:01:40.000
that’s what we’re here for.
01:01:40.000 –> 01:01:41.000
Hmm!
01:01:41.000 –> 01:01:44.000
Did you wanna add anything on?
01:01:44.000 –> 01:01:49.000
That both covered most of my points of that awareness.
01:01:49.000 –> 01:01:58.000
Month. I see as well. I see young girls with leagues like mine, and I used to always wonder.
01:01:58.000 –> 01:02:01.000
Why don’t I have knees as a teenager?
01:02:01.000 –> 01:02:09.000
I never had knees. My leaks just went straight down, and you know, all these years been in the Germin there enough.
01:02:09.000 –> 01:02:18.000
I had just been aware of what life Adam was that would have saved a lot of questioning.
01:02:18.000 –> 01:02:23.000
And yeah, so really excited to do awareness, month.
01:02:23.000 –> 01:02:29.000
Thank you to out there. There’s definitely a lot more coverage now on social media, which is fantastic.
01:02:29.000 –> 01:02:44.000
And I put my journey out there publicly is the 2 of other ladies have as well to try and raise awareness, so that am I?
01:02:44.000 –> 01:02:45.000
Okay.
01:02:45.000 –> 01:02:51.000
One piece of advice is, try and find a local email day that can understand your situation, and that can help you with a conservative management path.
01:02:51.000 –> 01:03:08.000
Of fundings and issue as well. Even if you did one or 2 sessions, you could be equipped with the skills to do self email day at home, and at least some compression garments to help yeah.
01:03:08.000 –> 01:03:14.000
Yeah, absolutely. So make sure that you take a screenshot, write it down.
01:03:14.000 –> 01:03:15.000
Take a photo of Christie, Anna, and misties details.
01:03:15.000 –> 01:03:23.000
There just a last minute comment coming through, ladies. Thank you, Christie, Anna, and misty for sharing your time and honesty.
01:03:23.000 –> 01:03:36.000
About your journey. You are all amazing.
01:03:36.000 –> 01:03:37.000
Yeah.
01:03:37.000 –> 01:03:41.000
Thank you, and not amazing. We just need to do to make our lives a bit better and helping spread awareness will hopefully help everyone else as well.
01:03:41.000 –> 01:03:42.000
Yeah, absolutely. Yeah.
01:03:42.000 –> 01:03:46.000
Absolutely. You’re worth it.
01:03:46.000 –> 01:03:49.000
Okay, so please don’t forget to reach out to us.
01:03:49.000 –> 01:03:50.000
I apologize if we didn’t get to a question this evening.
01:03:50.000 –> 01:03:56.000
Please reach out to us directly on the social media channels.
01:03:56.000 –> 01:04:02.000
There, or to Christy, and or misty, directly happy life.
01:04:02.000 –> 01:04:06.000
The team awareness month. Thank you, every one for joining us tonight.
01:04:06.000 –> 01:04:10.000
Enjoy the rest of your evening, and we hope to see you again really soon.
01:04:10.000 –> 01:04:12.000
Thanks, Emily, bye, everyone!
01:04:12.000 –> 01:04:13.000
Thank you.
01:04:13.000 –> 01:04:14.000
Thank you. Bye, bye!
01:04:14.000 –> 01:04:21.000
You bua-bye!